tag:blogger.com,1999:blog-50406581378136250122024-03-18T22:23:19.124-05:00Reflections ofReagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.comBlogger81125tag:blogger.com,1999:blog-5040658137813625012.post-15728572155632654152013-04-14T22:33:00.003-05:002013-04-14T22:33:25.409-05:00Ready to Roll.....California Bound!Hello world! We are here and gearing up for our big trip to California this week for Reagan's annual heart cath, (that happens to be 3 months overdue). From the looks of this pic, you wouldn't believe she's getting ready for her 8th heart cath!<br />
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Rod, Reagan & I will be flying out early Tuesday morning to head to California. This will be our first "cross-country" trip to Cali so, unfortunately, it couldn't be done non-stop. Sure was nice catching non-stops out of Austin to San Jose-- Oh well! Soooo..... praying for safe travels, on-time arrivals, catching connecting flights and baggage to arrive with us! And, of course, for good health & great reports from the doctors in California. If all goes as planned, we should be back on our cross-country flight to Virginia on Saturday.<br />
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Since my last post, Reagan was able to get her dental work (1 crown & 2 fillings) done "with flying colors", as the anesthesiologist put it. We are hoping she handles the anesthesia just as well this week for her heart cath. <br />
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Also, Reagan visited the Opthamologist for the first time and found out that she has astigmatisms in both eyes and is a little nearsighted. She had to get glasses and is taking it day by day learning to wear them for longer and longer periods of time. Hoping they help and she grows used to them rather quickly.<br />
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Please pray for Nolan, as well, as he will be staying back with my dear college friend, Heather Farester. Heather and I met in college, roomed together and are now living within an hr. from each other. Her son and Nolan are 1 yr. apart. Thank you Heather for not only feeding & sheltering my child but filling-in as his "homeschool teacher" while I'm gone. Makes it much easier to focus on Reagan during this time when I know Nolan is in such good hands!<br />
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I will update as we know more. Tuesday is our travel day, Wednesday is her pre-op appt, & the cath is not until Thursday. Thanks again for following us on this journey!Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-68302200909152072222013-03-13T16:47:00.000-05:002013-03-13T16:47:46.959-05:00Winter=Stress....So Ready for Spring<br />
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<span class="Apple-style-span" style="font-size: small;">Since Reagan’s 6<sup>th</sup> Birthday, life has been busy. The day after Reagan’s birthday she was able to go to and participate in Disney on Ice: Treasure Trove in Washington, D.C. Minnie Mouse’s dad just so happens to work with Rod, and they set it all up for the whole family to go to the show and for Reagan to be in it. It was a great experience for her and she did great!! Here is a pic of her debut…..</span></div>
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<tr><td class="tr-caption" style="text-align: center;">On stage with Rapunzel and Flynn</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Backstage at the Meet 'n Greet</td></tr>
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<span class="Apple-style-span" style="font-size: small;">February and March have been busy and stressful. When Reagan got sick in January and spent 5 days in the hospital with a respiratory illness, her heart cath that was scheduled for Feb. 1 in California had to be postponed until March 1 to allow her time to get better. She did get better, however, Reagan has some dental work that has been six months trying to schedule. Back in September at her regular dental exam/cleaning, the dentist found that Reagan had two cavities that needed fillings. Due to Reagan’s heart condition, she has to have dental work done in an OR with anesthesia in order to be monitored more closely. Our cardiologist (out of Walter Reed) has been trying to arrange this to be done at Children’s National Medical Center in D.C. but to no avail. Knowing Reagan has this dental work that needs to be done, he did not feel comfortable sending her to California for her cath as it increases risks of infection going to the heart. I then called and rescheduled her cath, once again, for April 18. </span></div>
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<span class="Apple-style-span" style="font-size: small;">Last week, the kids had their dental exam/cleaning once again and one of the cavities that needs a filling has gotten worse and now needs a crown. Thankfully, our dentist was able to arrange a time at Children’s and to arrange anesthesia for the procedure for March 15<sup>th</sup>. Last Friday, we went for Reagan’s pre-op visit at Children’s for them to assess her and the situation to determine if they are comfortable going through with this procedure. Just a little over a week ago, Reagan finished a 10 day round of antibiotics for some new respiratory thing that crept up on her back in late February. Due to her having a cough left from this and her lungs still not being at optimal strength, they were leary of whether to go through with it on the 15<sup>th</sup>. Just last night (Wed), I got a call from the Nurse Practitioner who saw Reagan at her pre-op visit and told me they are going to go ahead with her procedure but that they would like her Pulminologist to check her out this Thurs. to make sure her lungs are in a better place than they were last Friday at the pre-op visit. So………we will go see the Pulminologist on Thurs. (tomorrow) and if she gives us the green light, Reagan will go in Friday for her dental work. Phew!!! I never knew cavities and crowns could be this much trouble. I am praying her lungs continue to improve and that she can get this done on Friday. I have been so stressed over getting this set-up and worrying about her heart at the same time being overdue for a check-up. I’ve pulled her in and out of school in an effort to keep her healthy, for heart caths & dental work for some time now, that keep getting re-scheduled. She is so confused as to whether she is going to school each day or not. Ready to get this behind us so we can prepare to “stay healthy” for her heart cath on April 18. </span></div>
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<span class="Apple-style-span" style="font-size: small;">Please pray that if the procedure does happen this Friday, that all will go well as she has to be put to sleep (i.v. & breathing tube placed) for the dental work. In spite of all her doctor and hospital visits, the sweet angel plays “doctor” with her stuffed animals and babydolls daily. She gives them “check-ups” and says she’s going to be a doctor one day to help people feel better :-) **Note: her “check-ups” not only include the normal checking their temp, eyes, ears and throat, etc but she also places stickers all over their chest and tells them she’s doing their echo!! </span></div>
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Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-50076353582492036802013-02-15T10:57:00.001-06:002013-02-15T10:57:36.102-06:00Happy 6th Birthday Sweet Reagan!!<div class="separator" style="clear: both; text-align: center;">
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<span class="Apple-style-span" style="font-size: small;">Happy 6<sup>th</sup> Birthday, our sweet Reagan Grace!!! We love you soooo much!! You are a joy each and every day and bring us laughter in the mundane day to day routine. You always find a way to laugh and that laugh is very contagious. We are so very proud of your accomplishments and how far you have come. Mommy and Daddy hurt to watch you have to go through so much to be so little but you constantly amaze us at your strength! You are our superhero!!</span><br />
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<tr><td class="tr-caption" style="text-align: center;">Feb. 15, 2013 in Birthday outfit from Mimi & PawPaw</td></tr>
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<span class="Apple-style-span" style="font-size: small;">We are truly blessed to be your parents and pray for many more years to be able to do that. You’ve given us more gray hairs than we should probably have by now, but wouldn’t change it for the world. We love you!</span></div>
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<tr><td class="tr-caption" style="text-align: center;">1st Birthday</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">2nd Birthday</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">3rd Birthday</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">5th Birthday</td></tr>
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Thank You God for such an amazing little girl! She is our angel sent from Heaven and reminds us each day to be thankful in the little things :-)</div>
Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-24926515359589565932013-01-20T10:34:00.000-06:002013-01-20T10:34:31.517-06:00Home Again....Thanks for all your prayers during Reagan's recent hospitalization. None of the tests/cultures ever came back with any pertinent info so we're assuming she just had a bad virus that hit her pretty hard. Unfortunately, viruses affect Reagan pretty bad due to her DiGeorge Syndrome and of course, she always seems to get the ones that don't show up on test results. Oh well, just thankful for all the nurses, respiratory therapists and doctors who got her through this last illness. She was discharged on Friday afternoon on a 1/2L of oxygen and we have been home ever since just chilling. Thankfully, on Saturday she was able to come off the oxygen and is doing good holding her oxygen sats in the upper 90's. <br />
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<tr><td class="tr-caption" style="text-align: center;">Enjoying coloring at home with no oxygen</td></tr>
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Hopefully, now she can get back to some of her normal activities like<i><u> playing with her friends</u></i><br />
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<tr><td class="tr-caption" style="text-align: center;">Playing Rice Table with her friend Ryan</td></tr>
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<i><u>"working out" </u></i></div>
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<tr><td class="tr-caption" style="text-align: center;">Doing Pushups at a nearby workout park</td></tr>
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<i><u>Reading</u></i></div>
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<tr><td class="tr-caption" style="text-align: center;">Reading to her cousins Phoebe & Paige</td></tr>
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<i><u>And going to birthday parties</u></i></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBW-iFz7maUqzmNxUuNtWmC_0kuj97Lv50ikOO8V3_OqTXHi8weyXDvJ176CLZLOypf_vj5ka_SKP2e0gZVFOg46QoNxItBWzul81W9YW1fkmihAjZ8pNfZXNFXqOX8kjmUE1cUMh6McQ/s1600/IMG_3755.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBW-iFz7maUqzmNxUuNtWmC_0kuj97Lv50ikOO8V3_OqTXHi8weyXDvJ176CLZLOypf_vj5ka_SKP2e0gZVFOg46QoNxItBWzul81W9YW1fkmihAjZ8pNfZXNFXqOX8kjmUE1cUMh6McQ/s320/IMG_3755.jpg" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">At her friend Macy's birthday party</td></tr>
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Speaking of which, our Big Girl has her own birthday coming up next month. </div>
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She will be turning 6 on Feb. 15!</div>
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As far as Reagan's heart cath in California, it has been rescheduled from Feb. 1 to March 1st. We won't be leaving now for California until late February. Hopefully, this will give her time to get her dental work done and celebrate a birthday before going to get her heart checked. Praying those little vessels of hers are growing and getting bigger, and <i>not</i> narrowing. </div>
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Until next time.....</div>
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<br />Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-60132014558526378032013-01-15T10:58:00.000-06:002013-01-15T10:58:54.487-06:00Winter Blues....I know it's been a long time since I've posted. We have been staying really busy in our daily routines. We started back to school in the Fall. Reagan is in Pre-K again this year to give her a full year of social interaction with her peers. She has been doing great "coming out of her shell". She loves school so much & asked to go on the weekends :-)<br />
I have been homeschooling Nolan, part of the reason I have not blogged lately. Between his school, baseball, Reagan's school & therapy schedule, we stay quite busy! All in all, she has been doing great.<br />
We were able to fly home to Texas over the holidays & enjoy a long visit with friends & family. Since returning, Reagan has had a little setback which has landed her in the hospital. This past Sunday she spiked a 103 temp & had labored breathing. I took her to the ER on Ft. Belvoir & she was immediately put on oxygen, given an iv for iv fluids & a dose of Rocephin. She was tested for flu & strep but both came back negative. Initially, they thought she might have some kind of pneumonia but after looking at her X-ray, it appeared she had something viral. (*Not surprised, as viruses hit Reagan pretty hard due to her DiGeorge Syndrome.) A transport by ambulance was then setup to transfer her to Walter Reed in Bethesda, Maryland where they have a PICU to better treat her & where her specialists are. Upon arrival, she was admitted to the pediatric floor but overnight she required more oxygen support & was working harder to breathe so the next morning (Mon) she was taken to the PICU. We are still in the PICU now. Many tests & cultures have been sent off, none of which have grown anything yet. The PICU is basically supporting her needs & covering all the bases just in case. She is on 2 antibiotics, Tamiflu, several breathing treatment meds & high-flow oxygen at the time. She has been on 8L of oxygen but reduced to 7L this morning. Her lungs still sound real crackly but she's moving air & breathing more comfortably which is a good sign! Reagan is also starting to show me signs of improvement like wanting to eat, color, watch cartoons, etc. unfortunately, her lungs usually take a little longer to "catch up" so looks like we'll still be here a few more days.<br />
A big thanks to Rod's unit for being so supportive & our friends in the area offering to help with Nolan. We truly appreciate it as juggling kids in & out of the hospital is a challenge in itself!<br />
On a side note, Reagan is scheduled to have her next heart cath in California Feb. 1. Her cardiologist here is communicating with the drs at Stanford on whether to go through with that as scheduled or postpone due to this illness. Still waiting for an answer on that. Also, at Reagan's most recent dental evaluation, they found she has two cavities that need fillings. She will have to have this done at Children's National Hospital here in DC for cardiac monitoring purposes. This is another issue we are trying to work out scheduling for. We are waiting to find out if the Stanford team would like her to have this completed before or after her cath. She was scheduled to have it done this Friday but obviously had to cancel due to her hospitalization. So, at this moment, not sure if our trip to California is still on for now or not.?<br />
As always, Thanks for all your prayers & support!!!Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-1571309230898687312012-07-17T11:35:00.000-05:002012-07-17T11:35:01.091-05:00How we're spending our HOT D.C. Days.....Hey everyone. Hope you are all staying cool this summer! It sure has been hot here in Virginia. Thankfully, our apartments have a pool and our community we live in has an even bigger pool so that provides us some relief. In fact, Reagan has become quite the fish this summer. Although she is still swimming with her flotation vest, she is getting braver and braver. She loves to jump off the side of the pool and go under then come back up. She thinks she is so big!!<br />
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Both kids finished out their school years in mid-June. Nolan finished 2nd grade and will be homeschooling next year for 3rd grade. The school here is definitely behind what he was doing in Texas and we do not want him to fall behind so since I do have my teaching degree, Rod and I decided it would be best to homeschool next year. I have spent my summer researching curriculum and preparing things for the upcoming school year. He also will be taking two courses on Tuesdays at a local church that offers supplemental classes for homeschoolers. He seems to be ok with it so pray for us as we embark on this new adventure. </div>
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<tr><td class="tr-caption" style="text-align: center;">Getting a jump-start on homeschooling. I am actually doing some Phonics & Handwriting lessons with Reagan this summer AND Nolan is doing Science & Handwriting.</td></tr>
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Reagan, on the other hand, had a wonderful school experience the last two months she was able to go. She was in a Pre-K class with only 6 kids and 2 teachers. She absolutely loved it and came home telling us about her days with excitement!! </div>
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<tr><td class="tr-caption" style="text-align: center;">Reagan and Mrs. Alf, her Pre-K teacher</td></tr>
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Since she is 5, we attended Kindergarten Registration at the school Nolan attended but I quickly got butterflies and did not have a peace about putting her in a class with 25 students. She has really made some great strides, socially, in her Pre-K class and to put her in such a huge environment in Kindergarten, we feel, along with her Pre-K teacher, that she would regress rather than progress. We asked if she could do another year of half-day Pre-K to give her the social experiences for an entire year that she desperately needs. The team at her IEP meeting all agreed, and she was granted a waiver to attend Pre-K again in the fall. </div>
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<tr><td class="tr-caption" style="text-align: center;">Reagan and her friend Jackson who was in her class this year.</td></tr>
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Reagan is soooo smart and is showing signs everyday of being ready to learn to read so I am planning on homeschooling her Kindergarten material in the mornings this upcoming year and she will attend Pre-K in the afternoons. While she's at school in the afternoons, Nolan and I will have time to do his lessons. We will re-evaluate her situation after next year and decide whether to go on to Kindergarten or stay home and homeschool 1st grade. This buys us some time for her to development more physically and socially before going into a bigger class environment. </div>
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As far as developing, she is a therapy machine. She goes to Speech twice a week, Physical Therapy twice a week and Occupational Therapy once a week. I really like the new therapy place she attends and all the therapists have been great! She is already making great strides just in the last few months since starting here. </div>
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Reagan's health has been good. Other than her respiratory illness she had back in late April which hospitalized her for a week, she has been doing good. Back in June, she ran fever for a few days and we were concerned she was coming down with something new but she eventually worked through it and got well, to which we are so thankful! She has a cardiology appt. this Wednesday and is due for her next heart cath in January of 2013 out in California. We are praying those little vessels of hers are growing and not narrowing and that her new heart valve is functioning properly. I am so pleased with her cardiologist as he is a Colonel in the Army and the first time we met him he said he "knew" Reagan's heart surgeon in California. He used to be stationed in Hawaii and they would send patients to Dr. Hanley from Hawaii. God is good! I was so worried about the new doctors and them not allowing Reagan to go to California for her check-ups but God worked it all out ahead of time!! And, Reagan's pulminologist is married to her cardiologist. How ironic is that! When you have a heart and lung kid, it makes it nice to have both doctors in the same family. I envision them sitting at the dinner table at night talking about Reagan's case--HA! Just Kidding!!</div>
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Reagan also was seen recently by a GI doctor here at Ft. Belvoir. Although Reagan has had her g-tube since she was 8 months old, she really hasn't been followed by GI regularly since she was a baby. She had such bigger issues, with her heart and lungs, that we let the GI part of it slide to the back burner. Thankfully, Reagan has gone from using the g-tube 24/7 for her nutrients to only having it run at night now while she sleeps for extra calories. She does however, eat small amounts and not enough to consider getting rid of her tube so I asked the GI dr. about what can be done to try to work towards a goal of one day getting rid of her tube. She started Reagan on Periactin, a medicine that stimulates her appetite to get her to eat more therefore supplying herself with enough nutrition without having to use the tube to supplement. We have been using the Periactin for a few weeks now and it seems to be working great. She stays hungry all the time. It's like having a teenage boy in the house- I never can fill her up! I am praying this trend will continue and we might be able to start coming down on the amount we give her at night. Her GI dr. said it is a slow process so it could be a goal we work on over the next year. </div>
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Other than that, we have enjoyed having some visitors this summer. We are so thankful for our friends, the Kostenckis, for coming to see us. Their son, Caleb, turned 9 in June and wanted to see Nolan as his birthday gift so they made the long trip up! </div>
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We enjoyed visiting the National Zoo with them while they were here.</div>
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Also, while they were here, Rod had to fly one night so we all went up to his work to watch him take-off. It was a fun experience for all!</div>
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<tr><td class="tr-caption" style="text-align: center;">Pilot-in-Command Rod preparing for take-off</td></tr>
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It was a great week and the kids were sad to see them leave. Thankfully, another set of friends is here this week. In fact, Nolan knew nothing about it and they surprised him on Saturday. The Thomas' have a son, Grant, who Nolan was in Kindergarten, 1st & 2nd grade with back in Texas. </div>
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<tr><td class="tr-caption" style="text-align: center;">Nolan and Grant</td></tr>
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Nolan has enjoyed spending as much time as possible with Grant this week. </div>
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<tr><td class="tr-caption" style="text-align: center;">Nolan and Thomas boys at Arlington Cemetery</td></tr>
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I just hate that it will all come to an end but thankfully, Grandparents (my dad and stepmom) will be here on Friday. Hopefully, that will help take some of the blow of Grant leaving. </div>
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Thanks again for stopping in and checking on us along this journey! We enjoy hearing from all of you. Oh, and come visit anytime!! We'd love to see you and show you our Nation's Capital!</div>
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</div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-38744448698475942022012-04-10T09:45:00.002-05:002012-04-10T09:45:51.273-05:00Settling in....<br />
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<span style="letter-spacing: 0.0px;">As Dora says, “We did it! We did it!” We traveled up & over the state of Texas, through the states of Arkansas & Tennessee & finally made it to the hills of Virginia. The kids and I, along with Aunt Kay, made it to Virginia on March 11. Aunt Kay was kind enough to stay for almost 2 weeks to help take care of the kids while I unpacked our boxes. It has been 4 weeks since we arrived and we are settling in to our new “home away from home”. Reagan still asks when we’re going back to our “orange home” in Texas. (Our house there is a reddish orange brick.) HA! </span></div>
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<span style="letter-spacing: 0.0px;">Nolan was able to take the whole first week here to relax and settle in, then he began his new school. He attended 2 weeks and then got another Spring Break this past week. He will start back on Tues. and finish out the year. During our first week here, we were able to go downtown DC and see some of the sights. </span></div>
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<span style="letter-spacing: 0.0px;">Here we are riding the Metrorail system for the first time. </span></div>
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<span style="letter-spacing: 0.0px;">We spent the afternoon seeing the sights of the National Mall (Washington Monument, LIncoln Memorial, World War II memorial, etc). </span></div>
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<tr><td class="tr-caption" style="text-align: center;">I can see it now... President Reagan with a campaign slogan of "Don't Worry, Be Happy"</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Nolan at Lincoln Memorial</td></tr>
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<span style="letter-spacing: 0.0px;">It began raining, so we decided to take our adventure indoor and saw part of the Museum of American History. It was a great experience and we hope to get to see more of our Nation’s Capital while here the next few years.</span></div>
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<tr><td class="tr-caption" style="text-align: center;">Visit to Vietnam Memorial</td></tr>
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<span style="letter-spacing: 0.0px;">As far as Reagan goes, she is blossoming into a spirited little girl. She is still quite the little munchkin weighing in at only 29 lbs and is only 36 in tall. When we first arrived in Virginia, everything was in bloom here and she definitely noticed. She sounded like a rattly washing machine. We quickly got set up with a Case Manager at the Ft. Belvoir Community Hospital & she has been wonderful at helping me maneuver through this transition. She was able to get Reagan in for an initial appt with a pediatrician rather quickly. We met with the new pediatrician a little over 2 wks ago. She was a civilian pediatrician who works on base and was very professional, understanding and kind-hearted to this “nervous” mom. She listened to my needs as a mom of a special needs child as well as Reagan’s needs. And, she wrote out prescriptions for a steroid as well as an antibiotic, just because it was a Friday, and didn’t want me to get stuck needing either over the weekend- now that’s my kind of doctor! Reagan ended up doing the 5 days of steroids and now sounds much better. We still have the antibiotic on hand, but hopefully, will not be needing it. She also put in referrals for all of Reagan’s specialists (Cardiology, Pulminology, Immunology & all her therapies) as well as GI, Dietician & Developmental Dr. </span></div>
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<span style="letter-spacing: 0.0px;">So far we have seen the Pulminologist & will have appts with Cardiology & the Dietician before the end of the month. All of the chronic kids here at Belvoir are referred to Walter Reed (a.k.a. Bethesda Naval Medical Center) up in Bethesda, Maryland. It is about an hour drive (depending on traffic) or an hour & 20 min. Metro ride. Some of these specialists come down to Ft. Belvoir monthly to see kids for appts. but since we were trying to get in quickly for an initial appt. we did have to go up to Walter Reed. So, last week, due to the timing of her appt (3pm) we rode the Metro from just near our apt. to Bethesda. It really was not bad and beats sitting in this HORRIBLE traffic around here. I was quite pleased with the facilities and the doctor. However, after meeting with this great Pulminologist, he tells me it’s his last week because he’s retiring for the second time. He was wonderful and complimented me on dealing with/surviving with a child with such complex medical needs. He did give me a # I could reach him at for the next several weeks in case I needed something before seeing the new dr. He suggested switching Reagan from daily breathing treatments to daily inhaler treatments with a spacer. Reagan’s pulminologist back in Texas wanted to do this as well, but Reagan was not quite ready for the inhaler. The dr. at Walter Reed provided us with the spacer and had Reagan try it out as well as wrote her scripts for the inhalers for it. He also got an xray of her lungs while there so they can have a baseline “well” xray to go by. Reagan’s baseline xray is not normal so it’s good for them to have one on file of her lungs when she is well to compare to when she is “not so well”. He asked about her eyes as well. Reagan always has red, itchy eyes and I’ve always chalked it up to allergies but despite her taking Singulair daily and during the pollen seasons, Zyrtec as well, her eyes still bother her. So, he wrote a script for Patanol, an allergy eye drop. I mentioned her nose bleeds to him and he said something about the ENT there could cauterize the vessel in her nose but I told him the ENT in Texas did not want to do that because it would involve putting her under anesthesia. He said the ENT there is great and he would talk to him about other options for Reagan to try to deal with her nose. I got a call from the Pulminologist this morning & he has already discussed Reagan’s case with the ENT and feels he can help her without having to put her to sleep. Not having to deal with her nose bleeds as much would be great because we have discovered it is quite windy here in Virginia which only dries her nose out more. I will be calling and getting that appt. set up in the near future. Since seeing the Pulminologist last week, Reagan has done great switching over to the inhaler with spacer and it’s less maintenance for Mom, which is always great. We will see as the weeks go by how her lungs handle the switch. I am hoping they like the switch and we do not have to go back to the nebulizer. (If so, if any of my heart friends need Pulmicort, I have plenty on hand, I could share).</span></div>
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<span style="letter-spacing: 0.0px;">Next week, on the 17th, we will be headed back to Walter Reed to see the Cardiologist. I am praying that visit goes as well as the one with the Pulminologist. </span></div>
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<span style="letter-spacing: 0.0px;">In other news, the day after Nolan started his new school, I was able to meet with the Assistant Principal & Special Education Lead Teacher about Reagan’s situation and options for Kindergarten next year. They were quite receptive and helpful and willing to work with us. As Reagan’s endurance is not that of a regular 5 yr. old the school team in Texas had mentioned she might need modified school hours. Since she turned 3, she has only had Homebound services provided, due in part to all her medical things we were dealing with at the time. Now that her heart is fixed and she seems to be doing better medically, Rod and I are ready to let her try school again as she is quite the social butterfly and would love the interaction with other kids. It will be a trial and error process and pray she does not get too sick where she is not able to attend. In the meeting with the Assistant Principal & Sp. Ed. Lead Teacher, they were quite willing to deal with modified school hours and said they have done that in the past for other children. In prep for that, I asked if there was any Pre-K in the district and come to find out the only Pre-K provided by the Fairfax County Schools is for kids who are delayed in more than 2 areas, which Reagan is. I was able to observe the Pre-K and meet with the Pre-K team before deciding if we wanted to let Reagan try that for the remainder of this school year which goes until June 18. I was very impressed by the program and the setting (only 6 kids with 2 teachers)- a great first school experience for Reagan! The kids seemed to be at her level cognitively so it would be a challenging environment for her both socially and mentally. So, the big news of the day, is that Reagan is starting school today. Yep, today is the first day back from their Spring Break up here so a great time for Reagan to start. She will go today from 12:30-3:45 and eat lunch there, go to library weekly, play on a special playground just for the Pre-K and Learn, learn, learn, which she loves to do!! It is a half-day program 5 days a week. We are hoping if she does well with this than maybe in the fall she could go to Kindergarten for longer hours. She is very excited and has been talking about it ever since we took her to the school to meet the teachers. She got a new lunchbox and is ready to go! </span></div>
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<span style="letter-spacing: 0.0px;">Please pray a hedge of protection around my baby girl as she begins this new adventure!! Her teacher called me yesterday to talk and make sure she was all set to go today. She also said the kids were studying butterflies before Spring Break and their caterpillars had hatched over Spring Break & turned to butterflies so Reagan will get to see the butterflies today! How ironic, as my baby girl is leaving her cocoon and spreading her wings to fly off to school!! We are so proud of how far she has come!</span></div>
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<span style="letter-spacing: 0.0px;">Lastly, our awesome big brother Nolan deserves some attention. He is doing great in his new school, Lane Elementary. I met with his teacher and she spoke highly of him and how sweet he is. He is meeting friends and having new experiences of his own. He started riding the bus home from school just before Spring Break (something he’s never done before) and will begin riding it to school tomorrow. He also started his baseball season over Spring Break but his coach quickly noticed he was well advanced beyond the 7-8 yr. olds he was playing with so she suggested he move up to the Minors league (9-10 yr. olds). </span></div>
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<tr><td class="tr-caption" style="text-align: center;">He even made the Sports section of the Ft. Belvoir paper</td></tr>
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<span style="letter-spacing: 0.0px;">He had his first practice with that team, the Mets, last night. Rod also works with a guy whose son plays travel ball & set up a tryout for Nolan. Last Friday night, he tried out and did AWESOME!! He then was assigned to play with the Mt. Vernon Patriots, a 9-10 yrs. old travel baseball team in the area. He is quite excited and loving spending so much time on the ball field. This, of course, keeps us all quite busy but makes the time go by & not focus on missing his friends in Texas so much. : (</span></div>
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<span style="letter-spacing: 0.0px;">Thanks for checking in and now that both my kids will be in school, hopefully, I will have more time to blog and keep everyone updated on our family! We love and miss you all in Texas!! </span></div>
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<span style="letter-spacing: 0.0px;"><br /></span></div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-4029505754860115312012-03-08T23:29:00.001-06:002012-03-08T23:29:11.310-06:00Goodbye Temple...We love you!!!Well, this is going to be short because it's late and I still have more to do to prepare for our big day tomorrow. D-day is finally here! Tomorrow morning the kids and I will head out from Temple, TX on our 3 day journey to our new home in Virginia with Daddy. We are very saddened to leave all of our friends and family but know that in today's world we can "keep in touch" a lot better through technology. Please check the blog for updates not only on Reagan but our whole family. <br />
We had a lot of "last times"this week which were no fun but glad we were able to have them. We will cherish our last 7 yrs. spent in Temple forever. Plus, plan to come back here to "retire" in 3 yrs. That's right, after our time in Virginia, Rod will be just 3 yrs. away from retirement!!! We have already decided Central Texas is where we would like to be. That means this is only a temporary goodbye for now : )<br />
Here is a glimpse at our last week in Temple:<br />
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Eating with Rod's side of the family</div>
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Eating out with friends</div>
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Reagan with Ms. Donna, her Physical Therapist</div>
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Last Day with Mrs. Lauren, her Occupational Therapist</div>
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Reagan on her last day with Mrs. Melissa, her Homebound Teacher</div>
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Nolan's last day, with his 2nd grade teacher, Mrs. Villarreal</div>
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Nolan with his best bud Grant</div>
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Nolan with his Kindergarten teacher, Mrs. Sims</div>
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Although we'll be in Virginia the next few years, our hearts are with all of you!! </div>
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We love you,</div>
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Rod, Jen, Nolan & Reagan</div>
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<br />Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-13363391401933030472012-02-15T10:40:00.000-06:002012-02-15T10:40:19.997-06:00Happy 5th Birthday Reagan!!!<div class="separator" style="clear: both; text-align: center;">
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<span style="letter-spacing: 0.0px;">Baby girl, I cannot believe you are 5 years old today. Your Daddy, brother and I are sooo proud of you for how far you have come in these 5 years. There were days your Daddy and I did not know if you’d make it through the day.....And look at you now turning 5! You are such a strong little girl and so full of cheer. Your laugh is contagious and your Aunt Robyn has said on more than one occasion she’d like to record your laugh and use it as her ringtone. You brighten everyone’s day that you come in contact with. You have taught your family well how to cherish every moment and not take anything for granted!! You are God’s gift from above to show others His power....You are a true living miracle! Thank you for showing us how to smile through the hard times and keep pushing on toward the goal at hand. We love you dear Reagan and look forward to the next 5 minutes, hours, days or years with you!!</span></div>
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<span style="letter-spacing: 0.0px;">Here are some glimpses from the first 5 years....</span></div>
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<span style="letter-spacing: 0.0px;">The day you got to come home from the hospital after spending 10 days in the NICU</span></div>
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<span style="letter-spacing: 0.0px;">My precious one</span></div>
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<span style="letter-spacing: 0.0px;">Smiling through the rough times</span></div>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">1st birthday- feeding from a feeding tube. </span></span></div>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">You had already had one heart surgery and a two major scares (a stroke & staph infection)</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Spending Easter in the hospital in California</span></td></tr>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">Enjoying the exersaucer with oxygen & feeding tube attached </span></span></div>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">(Mama spent the whole time untangling your tubes : )</span></span></div>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">Learning to crawl at 2 yrs old with a feeding tube in tow</span></span></div>
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<span style="letter-spacing: 0.0px;"><span class="Apple-style-span" style="font-size: small;">Learning to walk with your walker</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Your 2nd birthday, feeling a little under the weather after just being sick</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Your 3rd birthday (Finally able to eat your cake and enjoy it)</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Many days spent in the hospital but with a smile : )</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Graduating from Homeschool Pre-K with your teacher Mrs. Melissa</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Acting crazy with your brother Nolan</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Your 4th birthday party</span></td></tr>
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Outside Ronald McDonald House in California (Our home away from home)</div>
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<span class="Apple-style-span" style="font-size: small;">My big girl today, all ready for school (boo hoo for Mom) </span></div>
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<span class="Apple-style-span" style="font-size: small;">Don't know what I'll do with myself when you're at school next year</span><span class="Apple-style-span" style="font-size: small;">.</span></div>
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And, of course, in closing, we couldn't have made it this far without our Lord, </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4yFzRIjNpxPAckIbAstVpxgr8I94cNwN9y3uyZB_9-UKOAsaa_IifTpZ4pL0Od2cSP-TAN5aJt6245AuYAwJ_aMMkDCQHbcVhKFzs0MIhVxF4YDYB7x7lidBo2oy7pMIQFJchq6JiKEg/s1600/IMG_0598.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4yFzRIjNpxPAckIbAstVpxgr8I94cNwN9y3uyZB_9-UKOAsaa_IifTpZ4pL0Od2cSP-TAN5aJt6245AuYAwJ_aMMkDCQHbcVhKFzs0MIhVxF4YDYB7x7lidBo2oy7pMIQFJchq6JiKEg/s320/IMG_0598.jpg" width="240" /></a></div>
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our friends helping taking care of Nolan, </div>
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our family helping us with Reagan in & out of the hospital,</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjeGbxCGAsFP4rSyMnhR3bYGuLbWq2-DV9MFQ0vRMkOwfND3noveiVUyOn9y_zzSOTxSiSBB-iQpJhfoQND_wdnymQQId0bE-Z7GskWgWDiPXw1WkHVb2rm30EaZr_IHEcGRxEX8Vufn0/s1600/IMG_0327.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjeGbxCGAsFP4rSyMnhR3bYGuLbWq2-DV9MFQ0vRMkOwfND3noveiVUyOn9y_zzSOTxSiSBB-iQpJhfoQND_wdnymQQId0bE-Z7GskWgWDiPXw1WkHVb2rm30EaZr_IHEcGRxEX8Vufn0/s320/IMG_0327.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Reagan with MiMi in hotel in California</td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Our main babysitter Aunt Kay</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizh1voPucUaBW39623h4o_cYBr5CP6vDn7r3RwOa9gy97XJQ3E8CaPbdwnK89SN85C8c6-_sm52mLFcUZORsPip_KDv8Ivdx3SedYDIL1MVMI0fjhSMQ5U1D4mqjcl314tO-Pd6Csk1YE/s1600/P1000067.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizh1voPucUaBW39623h4o_cYBr5CP6vDn7r3RwOa9gy97XJQ3E8CaPbdwnK89SN85C8c6-_sm52mLFcUZORsPip_KDv8Ivdx3SedYDIL1MVMI0fjhSMQ5U1D4mqjcl314tO-Pd6Csk1YE/s320/P1000067.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">and Miss Katie </span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPWlxdy0gKVmAalQLIXsIINCvLHoQvMJcpaev8naap3yMf_KfFQ_Z4Q53sKDlOYadkJmTCM8lo8tdZXbNVbcz27Ywhi0X1DTbpa6WPit0j6DMpQHwUpsSLo2_7lEYdk1ab0aL_cmVE4J8/s1600/Fam+%25281316%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPWlxdy0gKVmAalQLIXsIINCvLHoQvMJcpaev8naap3yMf_KfFQ_Z4Q53sKDlOYadkJmTCM8lo8tdZXbNVbcz27Ywhi0X1DTbpa6WPit0j6DMpQHwUpsSLo2_7lEYdk1ab0aL_cmVE4J8/s320/Fam+%25281316%2529.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">our generous friends at Wilsonart</span></td></tr>
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<span class="Apple-style-span" style="font-size: x-small;"> </span>all the therapists, doctors, nurses, etc. <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGHUz_BQ3PBszspsQUWjJ2S5crskToCtQxA0EaVkHjRUsTnsiRmOvikexzQdtJCekfi0K6xC-E0zkr1p-pBzudpaCdyiXQU3Kbfp6LqZQNKLcGdVyV5hnKq5aJLg3-03KrcUs0LNR1UmM/s1600/IMG_0851.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGHUz_BQ3PBszspsQUWjJ2S5crskToCtQxA0EaVkHjRUsTnsiRmOvikexzQdtJCekfi0K6xC-E0zkr1p-pBzudpaCdyiXQU3Kbfp6LqZQNKLcGdVyV5hnKq5aJLg3-03KrcUs0LNR1UmM/s320/IMG_0851.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Here with Ms. Donna who has been Reagan's Physical Therapist since she was a baby.</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSET_XOie9E854rWArpM19_B_ihsmp_8oCy8wjlbKAPbg2knshe6DD7Eh6TWa4nIoqoHCU_KzHU-HIV0P_OYUytQMq11QzQ2JLINAoiPBofjb4Pctp5pNgpYx0FPfsAWH1GZeSmLJBVc4/s1600/IMG_1373.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSET_XOie9E854rWArpM19_B_ihsmp_8oCy8wjlbKAPbg2knshe6DD7Eh6TWa4nIoqoHCU_KzHU-HIV0P_OYUytQMq11QzQ2JLINAoiPBofjb4Pctp5pNgpYx0FPfsAWH1GZeSmLJBVc4/s320/IMG_1373.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">and with Dr. Johnson, Reagan's beloved cardiologist since she was born.</span></td></tr>
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<i><span class="Apple-style-span" style="font-size: large;">And all of you for your support & prayers throughout this journey!! </span></i></div>
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<i><span class="Apple-style-span" style="font-size: large;">We love & thank you all!!</span></i></div>
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<br /></div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com4tag:blogger.com,1999:blog-5040658137813625012.post-88886810964047995592012-01-24T23:31:00.000-06:002012-01-24T23:31:31.988-06:00Home Sweet Home....Just wanted to let everyone know Reagan did great Friday night following her heart cath. She was discharged Sat. morning and we all took a much needed 5 hr. nap Sat. afternoon in the hotel room. Sunday morning we checked out of our hotel and headed for the airport. Reagan kept wanting to leave while Mom & I were packing up Sunday morning and I kept telling her, "Our airplane is not here yet." To which, she kept replying "Is our airplane here YET?" about every 15 minutes. She was definitely ready to come home! She also kept saying, "I feel better, I got out of the hospital."<br />
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<tr><td class="tr-caption" style="text-align: center;">Discharge Day...Ready to GO!</td></tr>
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She did great for the plane ride home, played with her toys for awhile then said, "I'm done" and laid down on my lap. Here's how she spent the rest of the flight...<br />
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Since coming home, she is back to her normal self blowing and going.....<br />
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<tr><td class="tr-caption" style="text-align: center;">Off to therapy she goes Monday...<br /></td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Off to ballet on Tuesday...<br /></td></tr>
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So thankful she was able to jump right back into her schedule this time without needing extra time to recover. We are truly thankful for an easy trip!!<br />
Speaking of trips, how about one to Virginia. Before Rod left in early January for Virginia, I contemplated whether the kids and I should stay in Texas until the end of the school year or if Reagan were to have a good checkup in CA, move sooner. Well, before knowing how well she'd do this time, Rod and I discussed the move and decided we should move sooner. <br />
Reason #1: Nolan plays baseball and last year Rod missed the season due to being in Afghanistan. Also, Nolan was on a winning team and they played until the end of July before getting knocked out of the State Playoffs. If we were to stay and that happened again, Rod would miss Nolan's baseball season again and that would keep us here longer, therefore keep our family apart longer. : ( <br />
By moving early, Nolan could play baseball in VA & Dad would get to be a part of it! : )<br />
Reason #2: Reagan turns 5 next month which means she will be able to attend Kindergarten in the fall. With us moving to Virginia & starting over with a new school, I would feel better about getting into their school system this year & getting a feel for it, as well as meet with the team about an IEP for Reagan. We know she is smart and capable of the work but know she is going to need some extra help with certain things. Her endurance we are not sure about, as far as if she can make it 7 hrs. a day at school. Moving early would allow me to get set up with a pediatrician, cardiologist, etc. in case they need to request modified school hours for her until she can go the distance of a regular school day. All that said, if we moved in the summer, I would be scrambling to find people at the school in order to have things set up for her BEFORE school started.<br />
Reason #3: Daddy is a sad, depressed little puppy without us and he has had to spend enough time away from his family. He needs us!!<br />
So, in conclusion, we have decided to move at our Spring Break time here in Texas which starts March 9th. The Spring Break in Virginia is actually an Easter Break the first week of April. By moving over our Spring Break, Nolan would start school up there for 2 weeks then get another week off. I only think this is fair seeing that he started school in Texas in Aug. & won't finish until Jun. 19 in VA. That deserves 2 Spring Breaks, right??<br />
With all that said, we need your prayers for our upcoming move, adjustment for Nolan starting a new school, getting setup with all new doctors, therapists, etc. for Reagan. It's a giant task, but I keep telling myself, "It's hard by the yard, but a cinch by the inch." So, each day (when time allows) I do a little something to help get ready for the Big Day. Today, we made a countdown chain together. Reagan cut the strips, Nolan glued & put the chain together. <br />
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1 loop for each week....7 weeks- Not long....it will be here before we know it!<br />
<br />Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-46733509430985465242012-01-20T22:31:00.003-06:002012-01-21T13:15:43.645-06:00Best Cath Ever!!!Reagan went back to the cath lab a little after 8 this morning. By about 10:40 I was getting word that Reagan was done and headed to recovery. I questioned them whether she truly was done or someone was just coming out to update us as they had blocked off 4 hrs. for Reagan's cath. Shortly after, Dr. Perry, the cardiologist who did her cath, came walking in and gave us great news!! She truly was done and did great. Back in July, Dr. Perry had to balloon 4 of Reagan's pulmonary arteries to her right lung. Today 3 of the 4 looked good but one of them to her right upper lobe had re-narrowed & they had to balloon it again. There also was an artery to her right middle lobe that they had to balloon as well. And, the best news of all was that her coronary artery that they had to balloon last time, due to it only measuring .3mm , has stayed open and nothing further had to be done! Praise God!! Oh, and a double bonus is we don't have to come back for her next cath for 1 YEAR. Overall, I am told she surprised Dr. Perry by how good she looked, which is a feat to do. <br />
Afterward in the recovery room, however, she was quite the handful for her mama. She has to lay flat for 4 hrs. after a cath without bending her legs. She was in no mood to follow those rules today and I literally felt like I was in a wrestling match with her trying to get her to stay down. Eventually, after I was almost brought to tears, I got her somewhat calmer and distracted by eating a popsicle. We finally were moved upstairs to a room for her overnight stay. She is on a slight bit (1/4 L) of oxygen following the cath but we are working on getting rid of that by morning. If the night goes well, the plan is to discharge Sat., spend the night in the hotel, and fly home Sunday.<br />
Thank you all for your prayers. Here are a couple of pics from this trip I wasn't able to add yesterday.<br />
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<tr><td class="tr-caption" style="text-align: center;">Reagan at her pre-cath appt. Thurs.<br />
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Painting at the RMH playroom with her heart friend, Callie.<br />
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Grabbing a yummy dinner from In-N-Out Burger<br />
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This morning before her heart cath<br />
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Being put to sleep in the cath lab<br />
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Post cath in her room tonight trying to eat some dinner<br />
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P.S. On a final note, while I've been gone Nolan hurt his elbow at a skating party Wed. night and it has remained swollen for two days now. Aunt Kay took him to the pediatrician for me today and got it x-rayed. They're not sure if it's fractured or if there's a fluid accumulation so he is being referred to an orthopedic & is in a sling until then. Guess I'll be spending next week at the doctors with Nolan. : ( </div>
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</tbody></table>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com3tag:blogger.com,1999:blog-5040658137813625012.post-26961918427357061662012-01-19T23:45:00.001-06:002012-01-19T23:45:51.204-06:00Pre-Cath DayReagan was so great today for all her procedures (echo, EKG, X-ray). Everyone could not believe how big she's gotten (although she's still a little peanut).
After her appt we were able to go by & see our favorite Nurse Practitioner, Jana, in the CVICU. She was full of herself for Jana, talking her ear off & showing Jana her ballet moves. Jana said it just made her day to get to see Reagan's little personality- seeing that she usually sees her post surgery when she is in no mood. Ha!
We then left the hospital & went by the Ronald McDonald House to see our friends, The Carvers. Their daughter Callie had a cath on Tuesday & they are awaiting word of whether she will have her next heart surgery next Monday or not. Callie & Reagan played all afternoon in the RMH playroom. We concluded the evening with a trip to our favorite California eatery...In-N-Out Burger....YUM!!!
It's now 9:30 & we are laying our heads on our pillows only to wake early in the morning for a 6:30am show time at the hospital. I will update tomorrow with the cath results. We are praying for an uneventful day. Thanks to all for your prayers!
Love to all-
JenReagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-73777635301195957482012-01-17T21:51:00.001-06:002012-01-17T21:51:22.015-06:00California...here we come again!Can't believe it's been since Thanksgiving since I updated the blog. We had a great Christmas. Reagan did run into some problems between Christmas and New Year's with nosebleeds. This time of year seems to be hard on her nose with the dry winter weather. We were referred to an ENT but he did not want to cauterize her nose vessel because it would mean sending her to the OR under anesthesia. We are now treating her nose daily with saline and bacitracin and so far have been doing good with no nosebleeds!
The first week of January was a hard one for us. Rod left to go to his next duty station- Ft. Belvoir, Virginia. The kids & I miss him dearly but it is great to be able to call him everyday & talk- quite unlike Afghanistan :-)
I am writing to let you all know that in the morning Reagan, my mom and I fly out to California. Reagan has her next heart cath on Friday. Because of the arteries they had to balloon back in the summer during her last cath we had to follow up in six months and it is now that time. She has a pre-cath appt in the clinic Th & then her heart cath is scheduled for 8am Friday. We are praying her arteries have grown and not narrowed and this will be an uneventful trip. If all goes as planned, she will spend Friday night in the hospital, discharge Saturday and fly back Sunday. Thank you so much to Aunt Kay who'll be manning Nolan while we're gone and for my mom going with me to help out since Rod cannot make it. Also, thanks to my friend Lori for taking Nolan part of the time as well. I am currently not feeling well so about to hit the bed & pray for a good nights sleep & better health tomorrow. Thanks to all of you for your support during this time & always!Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-18369776375567340392011-11-23T11:52:00.001-06:002011-11-23T12:29:40.503-06:00Truly Thankful....Happy Thanksgiving everyone! Hope everyone is enjoying time with their family this Thanksgiving. We are having a houseful starting later today. It is so great to be able to be home and healthy with our family rather than in the hospital. I know, however, that as I type this, there are those families that are spending this Thanksgiving in the hospital. We have some great friends, <a href="http://momentswithmoriah.blogspot.com/" target="_blank">the Nelson family</a>, whom we met in California, that are giving back this year and delivering meals to families whose kids are in the hospital this year at Lucile Packard Children's Hospital where we go for Reagan's heart surgeries. If you feel like contributing to this great cause, simply click on the Nelson family above and it will lead you to their blog where you can find out more. <br />
We are also thankful Rod is home this year for Thanksgiving. However, know there are soldiers separated from their families this year. Please remember to be in prayer for these soldiers and their families as well as the families spending Thanksgiving in the hospital.<br />
As far as Reagan goes, we had a little setback in early October. She was jumping on the trampoline with her brother one afternoon when she fractured her tibia. <br />
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<tr><td class="tr-caption" style="text-align: center;">Fractured tibia<br /><span class="Apple-style-span" style="font-size: small;">She had to wear a full leg cast for the next 5 weeks until it healed. </span></td></tr>
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Thankfully, she is now out of her cast, and back to trying to keep up with her brother. We are thankful this was a "normal" medical issue to deal with for a change. How awesome that Reagan has been out of the hospital since May of this year. Other than her night's stay after her heart cath in July, we have remained hospital-free to which we offer many thanks for!!<br />
After Reagan's hospital stay back in May for a respiratory illness, we received the home vest machine to do at home with her breathing treatments. We are praying this will be helpful in keeping her from being hospitalized this winter with any respiratory infections. Winter always seems to be a "booger"! (pun intended :)<br />
As we approach this Thanksgiving, we are thankful for our little miracle God gave us. She is such an inspiration to us daily....always happy, always trying, never gives up!! We are also thankful that we were able to be home in Temple, Tx the first five years of her life around family and friends that have supported us unconditionally along this journey. We are saddened as we host Thanksgiving that this will be our last year to do so for awhile. Rod will be leaving in early January to head up to Virginia and report for duty at Ft. Belvoir. The kids and I will follow in June upon completion of the school year. It will be a huge change for us but know God will be with us all the way. Please pray for Rod as he will be away from his family once more until we come later in the year. Also, for Reagan & I as we leave for Reagan's next heart cath in California on Jan 20. We pray her arteries, especially her coronary arteries, have grown and not narrowed so that this cath will be uneventful. <br />
I know I have used the word "thankful" many times in this post, but as it says in <a href="http://www.biblegateway.com/passage/?search=1+Thessalonians+5%3A18&version=KJV" target="_blank">1 Thessalonians 5:18</a>, "In EVERYTHING give thanks". I am just saddened that I am using Thanksgiving as my outlet to do so, as I should do it daily!<br />
Blessings to you & yours this Thanksgiving!! Thanks for stopping in.Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-71835156926940805472011-09-21T21:53:00.001-05:002011-09-21T21:53:52.062-05:00Lots of News.......<div class="separator" style="clear: both; text-align: left;">
Just checking in to let everyone know how well Reagan is doing. Haven't updated in awhile but we have been busy enjoying having Daddy back home from Afghanistan and kicking off the new school year with all of the activities that go along with a new year. Nolan (2nd grade) & Reagan (Pre-K) both started back to school in late Aug. They are both enjoying school and doing so well. </div>
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Miss Reagan does her work at home with Mrs. Melissa, her homebound teacher, that comes 4 days a week for a 30 min. session. And let me tell you, the girl learns alot in those 30 min. Last year, she basically mastered recognition of all her shapes, colors, letters, numbers, etc. Mrs. Melissa is now moving on to tougher objectives like counting, more/less, reading small sight words, reading comprehension, and doing it all through fun themes. As mentioned before, I used a program this summer with Reagan called Handwriting without Tears, to help her improve her hand control, hand strength, & writing letters & numbers. She has done so well as you can see.</div>
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Because she liked the idea of "homeschool" so much and requests it daily, I decided I would continue to teach her daily lessons during the school year as well. I am trying to focus on phonics, sequencing of stories, rebus reading, counting, one-to-one correspondence, more/less, etc. I do have my degree in early childhood & elementary education so I figure maybe I should put to use the ability God gave me to teach. After all, parents are their child's first teachers!<br />
On top of school, Reagan still has her "ther-wa-pa-we" (a.k.a. therapy). She goes to a clinic for Speech & Occupational Therapy twice a week and has made huge progress in both. Thank you Mrs. Liz, Lauren, Emily & Meg for all you do!! It's definitely paying off. Reagan also has Physical Therapy once a week with Ms. Donna who has brought Reagan, as a baby, from laying on the ground crying because she didn't know how to set herself up, to now walking, running, & even jumping. Because we had such a hot summer in Texas this year, we swam alot and Reagan has really gotten used to the water now, including blowing bubbles, going under & jumping off the side. Due to her acceptance of the water right now, Ms. Donna is taking her swimming for her therapy when her schedule allows & building up those muscles even more. Ms. Donna, you are the greatest!!<br />
Over the last year Reagan did gymnastics once a week to help improve her strength, endurance & body control. This year, we decided we'd switched gears and try ballet. She now takes a Pre-Ballet class once a week with 4 other little girls and loves it! She is doing great. I can't wait to see how she's doing come recital time next May. It ought to be interesting!!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvxuORNUzooTwbd5YmimF_tIrl3VtmkRUk_F6AmjJZIsG40PcHWcI5ZmGjo7Bt8G8rBQkiuahnWUArDh1gVtqRA5KsFxc5xjxi0dHH-O5rQOgcBSup6RDAfvSigioNHp7yVS9V7HZPO7Y/s1600/IMG_1920.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvxuORNUzooTwbd5YmimF_tIrl3VtmkRUk_F6AmjJZIsG40PcHWcI5ZmGjo7Bt8G8rBQkiuahnWUArDh1gVtqRA5KsFxc5xjxi0dHH-O5rQOgcBSup6RDAfvSigioNHp7yVS9V7HZPO7Y/s320/IMG_1920.jpg" width="240" /></a></div>
Speaking of next year, I guess there is no better time than now to officially announce that we will be moving next year. Rod has orders to Ft. Belvoir, VA (Washington, DC area). He has to report in January but we have decided the kids and I will stay in Texas until summer so both kids can finish their school year. We are all saddened by the move as we are native Texans and have been blessed to have been here the last 7 yrs. The positive in this move is that Daddy Rod won't have to deploy for 3 yrs. as Ft. Belvoir is a non-deployable base. I have known for almost a year about the move but have had to have alot of prayer/quiet times about it as I was not handling it very well. There are not many bases we can go with Reagan due to all the services/specialists she requires and the Washington, D.C. area not only has everything she will need but also has one of the top ranked school districts in the nation. God has had to work on my heart in getting me to be o.k. with the move but I know He will not lead us where He has not already prepared a table before us. Just the thought of starting over with all new therapists, teachers, doctors & hospitals, etc. makes me a little- or should I say alot- nervous. God is at work though,as I can already see, because the last time we saw Reagan's cardiologist in Austin he informed me that one of the cardiologists from the group in D.C. will be joining the group of drs. in Austin next year and he would talk with him about who would make a great cardiologist for Reagan when we move. Awesome!! I think that's the "table" I referred to earlier being set before we come.<br />
In closing, I'd like to thank all of you who prayed for our friend, Callie. She had a successful surgery but did have a very scary complication 4 days later through which she came through beautifully! I know it is your prayers and the prayers of many that got Callie & her parents through that tough time.<br />
Thanks again! Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-41571631841636601742011-08-02T22:17:00.000-05:002011-08-02T22:17:57.032-05:00Prayers Please!!<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQp-liQ2v2RKnf1dQ4tFDtzDk-pyrYoLaSHjvfBaT45zZxtdia_W8mKJdIwHv7o2DjIT17VGlg3O4gJ6ePLaoeXa0q4KVqvIsMZriLx9iW42E5HoOEin2v4qckiYOrrfz85v0kdFAPUXc/s1600/Feb+2011-July2011+128.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQp-liQ2v2RKnf1dQ4tFDtzDk-pyrYoLaSHjvfBaT45zZxtdia_W8mKJdIwHv7o2DjIT17VGlg3O4gJ6ePLaoeXa0q4KVqvIsMZriLx9iW42E5HoOEin2v4qckiYOrrfz85v0kdFAPUXc/s320/Feb+2011-July2011+128.JPG" width="240" /></a></div><div style="text-align: left;">Hey everyone,</div><div style="text-align: left;">I know how much all of you have been a support and prayer team for us with Reagan along her journey so I wanted to let you know about a heart friend of ours who will be having surgery tomorrow. Callie Carver, pictured here, as she flew out to California last week from her home in Florida, is one of our sweet friends we've met along this journey. We first met Callie when she was just a baby at the Ronald McDonald House in California. Reagan & Callie share the same heart surgeon, Dr. Hanley. Tomorrow, Callie will be having a major heart surgery & I want to ask for your prayers for her, her parents Will & Sarah, as well as the doctors, nurses & everyone caring for her. Callie has had several surgeries in California but never gone on bypass during any of these because it was too risky for her little body. In tomorrow's surgery, she will go on bypass for the first time during her surgery to remove 2 shunts and replace with a central shunt. I know what anxiety her parents are feeling as they approach tomorrow and all the while their daughter not knowing what's about to happen. It's a scary place, we parents have to go, on surgery days, but know we must go there in order to move on to more happy days at home with our children. Please pray for Miss Callie, Will & Sarah & all of her care team. Thank you all!!!</div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-213229184587684422011-07-27T00:09:00.000-05:002011-07-27T00:09:45.592-05:00Home Sweet Home....Just realized I better do an update and tell everyone we did make it home. Reagan's stay overnight in the hospital following her cath was uneventful and so last Thurs. morning she had a lung profusion scan and then she was discharged. We took it easy that day and the next to allow her to catch up from her cath. Then on Friday night, the boys (Nolan & Rod) were able to go to a Giants game<br />
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<div style="text-align: center;">and the girls (Reagan & Jen) stayed in for a girls night in the hotel. </div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9NVU4qfYaKQMajgctQdVb6YSfgmLaiO3jK4L-c24ZgRgyj-tALB0OdSGaaOJJUhv7VifwP77OP9LW4pznLSHeIUtcfb7qHzcqOIdoYA-IJ1tBq6kiVj81U34Zhquy8G_26SSyp8OVtrA/s1600/IMG_1817.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9NVU4qfYaKQMajgctQdVb6YSfgmLaiO3jK4L-c24ZgRgyj-tALB0OdSGaaOJJUhv7VifwP77OP9LW4pznLSHeIUtcfb7qHzcqOIdoYA-IJ1tBq6kiVj81U34Zhquy8G_26SSyp8OVtrA/s320/IMG_1817.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Room service and a movie</td></tr>
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<div style="text-align: center;">Then on Saturday we flew home.</div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3IT1uDxAp37h64qjdhCUflc1wV_eFg4FCPr-uGxzCSdCYGf3IqNz4bwoH9_CNPEjggMdyjptesKhUndJtukDJQFjfIXnAOPGtUE7-nK1XxReC71jPDqTkIth2KCVQLmRQ5awrRe26Fl4/s1600/IMG_1753.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3IT1uDxAp37h64qjdhCUflc1wV_eFg4FCPr-uGxzCSdCYGf3IqNz4bwoH9_CNPEjggMdyjptesKhUndJtukDJQFjfIXnAOPGtUE7-nK1XxReC71jPDqTkIth2KCVQLmRQ5awrRe26Fl4/s320/IMG_1753.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This is actually from our trip out, but Reagan did the same thing on both flights- slept!!</td></tr>
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Here are a few pics from our trip:<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZoFeOabMPquErBDVdfRRR6gGrNrlOpUzoQcNd8dk5T4Nb8eMxU6ZEI7DyinCjtAGAPBrDbD5_gr-Q623t6H-9zpQGgJxgfvHF3pCkOoP_jlnyvRm3w3mOtbABRgrwLSzaXzNpBcn0sqk/s1600/DSC05129.JPG" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZoFeOabMPquErBDVdfRRR6gGrNrlOpUzoQcNd8dk5T4Nb8eMxU6ZEI7DyinCjtAGAPBrDbD5_gr-Q623t6H-9zpQGgJxgfvHF3pCkOoP_jlnyvRm3w3mOtbABRgrwLSzaXzNpBcn0sqk/s320/DSC05129.JPG" width="240" /></a></div><div style="text-align: center;">Reagan checking out the fountains near our hotel</div><div style="text-align: right;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaw2J0coXKJFMmnvffwM0feIrlFtkhzlHgaBDGJTSNMZ22VHyI3C7FsQO2o_WMu_VtApgYbMnWr_1znlwns23g7wHGX6SJLV44twUBQ67Ql-lXKmE8BEiDHIpJK6c1Zx6t0hOs6xgH0Go/s1600/DSC05139.JPG" imageanchor="1"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaw2J0coXKJFMmnvffwM0feIrlFtkhzlHgaBDGJTSNMZ22VHyI3C7FsQO2o_WMu_VtApgYbMnWr_1znlwns23g7wHGX6SJLV44twUBQ67Ql-lXKmE8BEiDHIpJK6c1Zx6t0hOs6xgH0Go/s320/DSC05139.JPG" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;">Her fearless brother truly experiencing them</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFAF1xKzSAcTNJawmE8hc4pl-fhSMHsJxEV-O6MBwvCq54GHekgugrZr3qVCzmzwSSbep5yrqNfjFijNI2Bv3LIWlo8BzedonAzNcQECs9bExlpdkIk8C5q7Grvpgj4-_Vo92QmJBflOA/s1600/IMG_1767.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br />
</a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6Kbwu02kCr7J9L1HAyYdEvq50UOa9h09L0YEVL-EHaLdkHEDeVwNZKvtzUzuqk6GrogiH6_-Kj1iiBTJkKes9w9l4chsdORj2_zneKlo5G9JgCXCSUJ0Y5Jelhh63K2BPr_-XqMRcNMA/s1600/IMG_1765.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6Kbwu02kCr7J9L1HAyYdEvq50UOa9h09L0YEVL-EHaLdkHEDeVwNZKvtzUzuqk6GrogiH6_-Kj1iiBTJkKes9w9l4chsdORj2_zneKlo5G9JgCXCSUJ0Y5Jelhh63K2BPr_-XqMRcNMA/s320/IMG_1765.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Acting crazy</div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiI4yXM5ALScJDuBxaT8Scrvi4gSbX6V40CB0Kyh736QTQetlFD6zkQEgd4Ex2J39vYAPPpBODGG8ejhGOZEUfMDpzuKBOVbQiCbOXyxQC6RkwQPXfrwUSwqWzEFKj3TztQI2cdl7TUN-0/s1600/IMG_1768.JPG" imageanchor="1"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiI4yXM5ALScJDuBxaT8Scrvi4gSbX6V40CB0Kyh736QTQetlFD6zkQEgd4Ex2J39vYAPPpBODGG8ejhGOZEUfMDpzuKBOVbQiCbOXyxQC6RkwQPXfrwUSwqWzEFKj3TztQI2cdl7TUN-0/s320/IMG_1768.JPG" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;">Just relaxing</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW5FENMVCfRdr4pfPb5Ga304Tzpgd9jD-hGsjqOf46a7sef62B6bVrs2qAovYG8j_BTgY8ycuyWKsoDJfqvW3LYhnoqLawQO2bGq2JDTLFx-JwxkNvvPTglwjRqhU7EZF_ztuJ_vmwYvQ/s1600/IMG_1780.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW5FENMVCfRdr4pfPb5Ga304Tzpgd9jD-hGsjqOf46a7sef62B6bVrs2qAovYG8j_BTgY8ycuyWKsoDJfqvW3LYhnoqLawQO2bGq2JDTLFx-JwxkNvvPTglwjRqhU7EZF_ztuJ_vmwYvQ/s320/IMG_1780.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Frog Fountain at Stanford Shopping Center near hospital</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZoOyKLeHi0sppM25G25WgiA437mLJMHDGMvj2tcwn46iR2M3m3OYijBh0HQlgnehwjAo6wTAHl1g6iXyMh0_YlNLY79D1UXj9xbvoayW4VuOIeAAfGJssjm8XTfvM8uoXczsXg2ra_QM/s1600/IMG_1794.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZoOyKLeHi0sppM25G25WgiA437mLJMHDGMvj2tcwn46iR2M3m3OYijBh0HQlgnehwjAo6wTAHl1g6iXyMh0_YlNLY79D1UXj9xbvoayW4VuOIeAAfGJssjm8XTfvM8uoXczsXg2ra_QM/s320/IMG_1794.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Morning of cath, all dressed and waiting to go</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF8O5cj3GGaox_15Gh5w-HeGCdlurn-bkDFQ0Vle0B8V19BsgmyIlgPKb1aIc6LJOqhlqp5MjZqSKMV9EPRtCQ6kvgHMM0EDVhr9voXmPDi2uNUosjw1v-UYk_OMCYSKXPKlGiypuYQfE/s1600/IMG_1798.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhF8O5cj3GGaox_15Gh5w-HeGCdlurn-bkDFQ0Vle0B8V19BsgmyIlgPKb1aIc6LJOqhlqp5MjZqSKMV9EPRtCQ6kvgHMM0EDVhr9voXmPDi2uNUosjw1v-UYk_OMCYSKXPKlGiypuYQfE/s320/IMG_1798.JPG" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;">How we left our baby girl in the cath lab after watching her be put to sleep with the mask</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVn0dT1aJvww1p5WvJae7Lw6UOpsEE4hZEo2sLxP2T-oX04ESvl71MWJsbAuwhpnK5e-kt_KlQ7VPjyFqfsrOWIYOlSK0p02WlY7XSztIIT4m41_z0KH-D_BeU67_BVQZifMnkkNMCVMc/s1600/IMG_1800.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVn0dT1aJvww1p5WvJae7Lw6UOpsEE4hZEo2sLxP2T-oX04ESvl71MWJsbAuwhpnK5e-kt_KlQ7VPjyFqfsrOWIYOlSK0p02WlY7XSztIIT4m41_z0KH-D_BeU67_BVQZifMnkkNMCVMc/s320/IMG_1800.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Our friends Anna & Hunter who we met last summer. Hunter boy (whose heart is not fixed yet) was in the hospital for a dehydration issue and so we got to visit them while Reagan was in the cath lab. Anna's husband, Rob, is in the Marines & so we share a common bond in two ways.</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5mrsVY2OB7a1aux-L2kOEv_NsEMARSd0wLIv4aC2gA5oklVN3I482-ewutw9LsHrwrGsDxHY0ZqW_BUgmbE4riK02_hnY2RiHuqfqjCubcL0XBwGkNw90k1_l8G4cmwsYUJINqXqoyes/s1600/IMG_1802.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5mrsVY2OB7a1aux-L2kOEv_NsEMARSd0wLIv4aC2gA5oklVN3I482-ewutw9LsHrwrGsDxHY0ZqW_BUgmbE4riK02_hnY2RiHuqfqjCubcL0XBwGkNw90k1_l8G4cmwsYUJINqXqoyes/s320/IMG_1802.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Reagan in recovery room after cath trying to wave</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT2xhf3Ti9xuvCBz81bvIaruUL_eFbX2t8hTFYQ3upUuALZnGMIS-wo3hcgByHKwjkPQAzBHJ2KsMsJY0OhHoritqRZ29qu4MN1IUR02vVXO3xje-LX1f8iOTc3EpkbXJSJPCo0UlRiOQ/s1600/IMG_1806.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT2xhf3Ti9xuvCBz81bvIaruUL_eFbX2t8hTFYQ3upUuALZnGMIS-wo3hcgByHKwjkPQAzBHJ2KsMsJY0OhHoritqRZ29qu4MN1IUR02vVXO3xje-LX1f8iOTc3EpkbXJSJPCo0UlRiOQ/s320/IMG_1806.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Discharge day- so happy to be out of that place</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUDlwv_y_QnzumHr4ctoLEAACvZi4lbsh7Qj699SHUjW9-_4huyUUVUGsFQlHHqaDI5xVmH5Pv4P_Xu5gYKVZwD-ymsfBRYrje7VRPCx4j588Dq-8oPzc5Sy6vq7RYX8lwHViQj5FIBXo/s1600/IMG_1810.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUDlwv_y_QnzumHr4ctoLEAACvZi4lbsh7Qj699SHUjW9-_4huyUUVUGsFQlHHqaDI5xVmH5Pv4P_Xu5gYKVZwD-ymsfBRYrje7VRPCx4j588Dq-8oPzc5Sy6vq7RYX8lwHViQj5FIBXo/s320/IMG_1810.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Ready to party</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOpe05l0HhK7YLT3lRmJlOPfkzw0IKPEUfnve7aonH3PIBk4xIuYbWWUrYuSOi-KNqSnLLxmJUXgqs-EoEVJPB5F0nES5IFqT7KyayT1u8iuiVYfWIoiRHwD-BpG671VdqGxxH4uvmAAY/s1600/IMG_1816.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOpe05l0HhK7YLT3lRmJlOPfkzw0IKPEUfnve7aonH3PIBk4xIuYbWWUrYuSOi-KNqSnLLxmJUXgqs-EoEVJPB5F0nES5IFqT7KyayT1u8iuiVYfWIoiRHwD-BpG671VdqGxxH4uvmAAY/s320/IMG_1816.jpg" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;">The greatest son & big brother in the world!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdZqG2ystetBklN2yUPA_sQs0cMcM5E1h-nZPOS2yLLuC2SZKJ8pWtrUJmfnafutnsAzg0bMqhEx3fGssS5ZwZlHHtNfIWWc0AIrU8KBrDOLsEqbavcqm0f3CUm4VYSF7IUHM5eWe6h1E/s1600/IMG_1819.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdZqG2ystetBklN2yUPA_sQs0cMcM5E1h-nZPOS2yLLuC2SZKJ8pWtrUJmfnafutnsAzg0bMqhEx3fGssS5ZwZlHHtNfIWWc0AIrU8KBrDOLsEqbavcqm0f3CUm4VYSF7IUHM5eWe6h1E/s320/IMG_1819.jpg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;">Hanging out in airport, ready to fly back home to Texas!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">I know it's alot of pics but since I couldn't add them all week, I had so many to choose from. Oh well!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">It wasn't until we got home that I was able to read over Reagan's cath report and actually read the numbers. I was quite shocked to find that her coronary artery that the cardiologist was so concerned about and therefore ended up ballooning only measured .35 mm instead of 1.4mm. After the dilation, thankfully, it now measures 1.2mm. I am so thankful she had the checkup when she did because if that artery were to have closed and cut off blood supply to her heart, she could have a massive heart attack. I am also thankful to the doctors who commit their life's work to these kids and use their talents to intervene and help them. Thank you Dr. Perry, Dr. Hanley & many others!!!</div><div class="separator" style="clear: both; text-align: center;">It is now our prayer that as Reagan grows, her vessels will grow with her and not continue to narrow so that she can get adequate blood supply to all the important areas of her little body. She is such a fighter and miracle! Rod and I stand in awe of her daily. Because of that tough spirit of hers, however, she keeps us on our toes and is already 4 going on 14. I pray by her teenage years, her heart will not give us trouble as she will probably be full of it herself!!</div><div class="separator" style="clear: both; text-align: center;">Thanks again to all for your prayers and support through this journey!</div><div class="separator" style="clear: both; text-align: center;">-Rod, Jen, Nolan & Reagan</div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-23943349726823229492011-07-20T22:57:00.000-05:002011-07-20T22:57:29.118-05:00Our Week So Far........Hey everyone,<br />
So sorry I have not updated since leaving for California. We did not bring our laptop as it is pretty much shot from spending a year in Afghanistan with Rod. There are no computers at our hotel so we have had to wait until being at the hospital to use their computers. I also don't have a way to add pics from this computer. So sad, as I have taken some good ones since being here. Oh well, will add them later.<br />
Since arriving, we have totally enjoyed the beautiful California weather. We've been wearing jeans and jackets, so different from Texas. Our first day, after stopping at the first In-N-Out Burger we could find, we finally made it to our hotel and spend the rest of the day exploring the grounds around the hotel which are quite nice. The boys, Nolan & Rod, brought their baseball gloves so they have taken every opportunity to go out and play catch since the weather is so great. <br />
Sunday morning, we were able to watch the Women's World Cup game in our hotel lobby on the big screen with other USA fans. Unfortunately, we lost but it was a fun game to watch. We then walked to the nearby movie theater and took in a movie together as a family. <br />
Monday, we had planned to go up to San Francisco for the afternoon and catch the Giants game that night. Unfortunately, we were having trouble getting tickets online so decided to try our luck at the gate. Our luck turned bad, as the only tickets available were Standing Room only. Rod & I were not up for spending 3 hrs. standing with kids so decided we would shoot for Friday night's game instead. We then went to a nearby park and while Reagan played, the boys played catch again near the park. It was so great being out as a family and letting the kids play without sweating to death until.....a little boy accidentally knocked Reagan over at the park. She was on a platform about one step high and lost her balance and fell to the ground. She immediately began crying and had a bloody nose. After finally getting her calmed down, we decided to find somewhere to have dinner and then head back to our hotel in San Jose & call it a night. Fortunately, we found a nice casual place where we could sit outside and eat with our bloody nosed daughter. The place we ate were kind enough to give us a cloth to put ice in to try to stop the bleeding. As Reagan takes aspirin daily, it was quite the challenge. In fact, it wasn't until we finally got back to our hotel, bathed her, and held her down with ice on her nose for quite awhile, did it finally quit bleeding. We put a band-aid across her nose to protect it from getting scraped again. The boys were teasing her and calling her the villain on the new Harry Potter movie because she looked like she didn't have a nose. To which, she let them know how she felt about that comment. Ha!<br />
Tuesday, was Reagan's appt. in the Heart Center. She got an echo and we met with the cath/anesthesia team about her cath. We then were able to enjoy a little outside time again by our hotel pool. It was a little cool to swim but felt good just basking in the sun. That night, we were able to connect with some sweet heart friends we have met through this journey, the Nelsons. Justin & Victoria's daughter Moriah has the same heart condition as Reagan and are such a sweet family and testimony to persevering this life with a special needs daughter. It was great to share the company of their family and see their newest addition, baby brother Jadon, whose only 2 wks. old. Thank you Nelsons for a fun night of food, friends & fellowship! <br />
And then we make it to today, Wednesday, which has been quite a day in itself. We have been at the hospital since 7am this morning. Reagan was the first cath of the day at 8:30. They had reserved 4 hrs. for her in the cath lab but as we know, Reagan usually keeps the doctors longer than expected. The cath showed all good numbers as far as pressures in her heart but it unfortunately showed she had narrowings in 4 of her pulmonary arteries which they were able to balloon and open up more. We then got the dreaded call about the time she should be finished telling us the cardiologist wanted to talk with us. He told us Reagan's coronary arteries, which Dr. Hanley severed in her last surgery but then miraculously repaired and saved her life, had a narrowing that needed to be addressed. We had to sign a new consent for them to go in and balloon that artery with hopes that it would open up and allow more flow. Otherwise, a stent would need to be placed in that artery and that is not a favorable option as those tend to clot more often. This is something adult cardiologist deal with more & so one was called in to work along side the pediatric cardiologist to attempt ballooning the coronary artery. We signed the consent, said a prayer together, and then anxiously awaited the results. It was a stressful time and not what we had anticipated at all, but finally we got the call that they were done and it went well. The cardiologist then took us back into the imaging room and showed us all the pics from the cath and explained each one. The before/after of each artery that was narrowed and then the ballooning of the coronary artery. Oh, by the way, they also explored Reagan's blood clot which they determined to not be a clot after all, but a narrowing and so they also ballooned that area and found better results afterwards. We are so thankful this intervention helped for now and pray that in the coming weeks, months, her vessels will continue to grow and not narrow again. Because of the issue with her coronary artery, we now will have to come back in 6 months for another cath to be sure these areas are doing ok. She is spending the night and will have a lung profusion scan done tomorrow and then hopefully discharge. She had some bleeding and discomfort at her cath site so has had to lay flat for longer than she wants. Hopefully, she will be able to rest and have an uneventful night. <br />
We are sooooooo thankful for all of you, your supportive messages and prayers especially!! Thanks again. Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com0tag:blogger.com,1999:blog-5040658137813625012.post-54836801850860656072011-07-15T16:45:00.000-05:002011-07-15T16:45:59.722-05:00California Bound....I know it's been awhile since updating but as they say, no news is usually good news. We have managed to stay out of the hospital since May. We have been very busy at home ever since.<br />
<div style="text-align: center;">Finishing up the school year</div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGlEEFTjPa2EHH-DZ4kLjNNVd4h0dz2d1mBgSYsBiJxYtMCfsobc_uWfI0qT8JCfaLqJshhbiAsnzpOnDWh7EdfnbdBumb0tySTEOHfuDXqxeFMrvga0ggLVBk-09sNZba2hso-FmG4uE/s1600/DSC05076.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGlEEFTjPa2EHH-DZ4kLjNNVd4h0dz2d1mBgSYsBiJxYtMCfsobc_uWfI0qT8JCfaLqJshhbiAsnzpOnDWh7EdfnbdBumb0tySTEOHfuDXqxeFMrvga0ggLVBk-09sNZba2hso-FmG4uE/s320/DSC05076.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Reagan & her homebound teacher, Mrs. Melissa<br />
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</tbody></table>Since Reagan has done so well learning lots of things from Mrs. Melissa all year, I decided I would start a homeschool program with Reagan over the summer to help retain as well as add to her knowledge base. She is so smart and loves learning! We have successfully done a homeschool lesson M-Th every week this summer. I am using the program Handwriting without Tears which was developed by Occupational Therapists. It has been great for Reagan and she loves it. In fact, if I get busy she reminds me, "We have to do homeschool." <br />
<div>In addition to doing homeschool, Reagan attends her gymnastics & physical therapy once a week, speech & occupational therapy twice a week and we've been going to the public library this summer which she enjoys.<br />
Between Reagan and Nolan's schedules, we stay quite busy and Reagan enjoys being her brother's #1 fan<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiZ4qGx1xVlx8JtQC6hE2f1el0dC8CBHOIST9W2VxkqkE6T8aUL6Ed4fWPOMdOM-P-Tw6BupH6jtyjmgyoVkpvxoEuPR5STqUapTdsqNdY8YaKw0jVo6bma8f6hQU59ntxiGkdK2bTA_8/s1600/IMG_1611.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiZ4qGx1xVlx8JtQC6hE2f1el0dC8CBHOIST9W2VxkqkE6T8aUL6Ed4fWPOMdOM-P-Tw6BupH6jtyjmgyoVkpvxoEuPR5STqUapTdsqNdY8YaKw0jVo6bma8f6hQU59ntxiGkdK2bTA_8/s320/IMG_1611.jpg" width="240" /></a></div><div class="" style="clear: both; text-align: center;">at his baseball games</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-bqhrbKY2x35mdUfGwfodhxE1DGGooEr09HlKmWt-X9jIZpzp2XIZT5ZDcx3EqGRd0T6o_mn2XczQqFMzsQU8Zv3FPvKLMjnxKMQbNB0Dq8dA0yXW1pL_LIvqVjIr8fpfTPxGo91AfhQ/s1600/IMG_1623.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-bqhrbKY2x35mdUfGwfodhxE1DGGooEr09HlKmWt-X9jIZpzp2XIZT5ZDcx3EqGRd0T6o_mn2XczQqFMzsQU8Zv3FPvKLMjnxKMQbNB0Dq8dA0yXW1pL_LIvqVjIr8fpfTPxGo91AfhQ/s320/IMG_1623.jpg" width="240" /></a></div><div class="" style="clear: both; text-align: center;">at his track meets</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj68pMHn3phUOyISO2ixSuYKdjtVSkOf-Cdd7EXs_Y9LTY0S3pA1r0UHUDa5xjwPaI5NdYP5Z8hyphenhyphen9RoXB-MXWLX2jKwl0pRcYnG25oLYy6n2toQ4RB-gj8yMN4sy-DGvAYLkKwm2m55sJo/s1600/IMG_1647.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj68pMHn3phUOyISO2ixSuYKdjtVSkOf-Cdd7EXs_Y9LTY0S3pA1r0UHUDa5xjwPaI5NdYP5Z8hyphenhyphen9RoXB-MXWLX2jKwl0pRcYnG25oLYy6n2toQ4RB-gj8yMN4sy-DGvAYLkKwm2m55sJo/s320/IMG_1647.JPG" width="320" /></a></div><div class="" style="clear: both; text-align: center;">or simply playing a football game together at home<br />
<br />
</div><div class="" style="clear: both; text-align: left;">In addition to adoring her brother Nolan, she loves her daddy. We had the joy of welcoming daddy home from Afghanistan in July. It was a long year but we all survived!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyT9yTweOBVOUC6YctpUYAnRxU1eVSEEGCCrhv-qnyLt_18KnweeTyMTIig2rbFTzzoEktBUpaiB3j8nMAoQwEzwpBgGp9QIKnmr3BlLhh0PqjOjGsXo4YAN7k5AZRiFcEk9sKnCIi4gI/s1600/IMG_1681.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyT9yTweOBVOUC6YctpUYAnRxU1eVSEEGCCrhv-qnyLt_18KnweeTyMTIig2rbFTzzoEktBUpaiB3j8nMAoQwEzwpBgGp9QIKnmr3BlLhh0PqjOjGsXo4YAN7k5AZRiFcEk9sKnCIi4gI/s320/IMG_1681.jpg" width="240" /></a></div><div class="" style="clear: both; text-align: left;">We have enjoyed our time back together as a family since Daddy returned home in late June. </div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQB1NIh2R58Lr60z5jWMG4R76Tn_WCgK6l2FQwTmmLUARw-ed2j3IZ_OwvBlSAnfaspQOQJMbGikApLlMIcrD4zmoWG6EMd3s0kQuOLyxYQd8Oa8kKUuVp7wQ5CgSRZjtgribZWIJRWPU/s1600/DSC05095.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQB1NIh2R58Lr60z5jWMG4R76Tn_WCgK6l2FQwTmmLUARw-ed2j3IZ_OwvBlSAnfaspQOQJMbGikApLlMIcrD4zmoWG6EMd3s0kQuOLyxYQd8Oa8kKUuVp7wQ5CgSRZjtgribZWIJRWPU/s320/DSC05095.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Welcome Home party</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlpJlVu1JBMHzCGbdOr4FNWa-x85SrauSzGqc9RjK7BozqvrmAOke1Ofhq4o-hALUImajC4G9miY8wzyYj4p__xwAHuGTsn5wlBKW4RRvbZ7HIY-shTi3xWj_t6ntHt9yjWsZGwy7eBrE/s1600/IMG_1718.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlpJlVu1JBMHzCGbdOr4FNWa-x85SrauSzGqc9RjK7BozqvrmAOke1Ofhq4o-hALUImajC4G9miY8wzyYj4p__xwAHuGTsn5wlBKW4RRvbZ7HIY-shTi3xWj_t6ntHt9yjWsZGwy7eBrE/s320/IMG_1718.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Horseshoe Bay Resort</td></tr>
</tbody></table><div style="text-align: left;"><br />
</div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1osah_K4XY-8mfm5CKkmZ4N0Iaxnxdp5ZQ2Gbjbm44p9m4aZmTpD4LvHb4ATTM-qxZY9Zu6N2FsSybZ4RCf-lWp0bFT83LUFsYnkceNetN28G2zsvompcXvsoNfhofo3wkMCGa6N6M2U/s1600/IMG_1740.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1osah_K4XY-8mfm5CKkmZ4N0Iaxnxdp5ZQ2Gbjbm44p9m4aZmTpD4LvHb4ATTM-qxZY9Zu6N2FsSybZ4RCf-lWp0bFT83LUFsYnkceNetN28G2zsvompcXvsoNfhofo3wkMCGa6N6M2U/s320/IMG_1740.JPG" width="320" /></a><br />
</td></tr>
<tr><td class="tr-caption" style="text-align: center;">and even a trip to the nail salon (with Daddy) to get her nails done in prep for our trip to California</td></tr>
</tbody></table>Yes, I did say California. Reagan is actually overdue for her one year post surgery heart cath. But because Rod was still deployed, we were able to push her checkup to July. Last May 2010, Reagan got her heart fully repaired. It is routine to have a heart cath done one year later to check on her heart, vessels, and in her case this time, her blood clot. We will leave our house before the sun comes up in the morning to head to the airport. The four of us will all fly to California for Reagan's checkup and heart cath this coming week. While there, we will try to enjoy the nice California weather and time together as a family. Her appt. in the heart clinic is next Tues. and her cath is scheduled for Wednesday. We will keep you posted on the results. To all our California connections, The Shirleys & The Nelsons, we look forward to trying to see you while there this next week.</div><div>We appreciate all your prayers for Reagan, her doctors & nurses and our travel safety. Thanks for looking in!!<br />
<div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"></div></div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-23042062531385741072011-05-16T10:11:00.000-05:002011-05-16T10:11:37.690-05:00We are HOMEJust so you know...we are HOME!! Reagan was discharged last Wednesday around 1:30pm and we were home just as Nolan was getting in from school that day. I know Reagan was glad to see her brother. Although Reagan was acting like she was ready to run a marathon, she was still on 1/2L of oxygen & still had a little recovering to do. We have been laying low and hanging out! <br />
We have been trying for some time to get the dr. to order Reagan a vest and machine for home to do breathing treatments like she does when she's sick in the hospital. This time our prayers were answered!! Reagan's vest & machine arrived on my doorstep Friday morning and she got her first home vest treatment within the hour.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUqnNqpI0WW2lh9dpMvOv0jsk65601T8FECS6OJc52QYftTFzGBCZgpUopZf-9EThTUS7WHjPsPIYV5PbgyXfqbOlryc0C0_Zdmkp87ndWn42ofQY_atipgnbkFLemRjIfQRFLGa_WtSQ/s1600/IMG_1531.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUqnNqpI0WW2lh9dpMvOv0jsk65601T8FECS6OJc52QYftTFzGBCZgpUopZf-9EThTUS7WHjPsPIYV5PbgyXfqbOlryc0C0_Zdmkp87ndWn42ofQY_atipgnbkFLemRjIfQRFLGa_WtSQ/s320/IMG_1531.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It's pink!!!!</td></tr>
</tbody></table><br />
Reagan is very responsive to these treatments and it seems they are what help her get better each time while in the hospital. Hopefully, by having one at home, we can avoid the hospital next time she comes down with something respiratory.<br />
In addition to just hanging out, my mom's 60th birthday is this week, so we (my brothers and I) surprised her this weekend with a party at my house. It was good to all be together for something other than Thanksgiving and Christmas. <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFCwNpF6O2z-24f6wexL-Y-M1EqMxplSkOGyGuay4jQLU5Iw-J_kyvVll27lKYE3otF8FA8A_qla9Ji84_zFmrpbp7_Kib9A9J2l_c9hTT9h52oJGK4eIJnVoEIfyIKti_zVWj34fMBG0/s1600/IMG_1537.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="189" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFCwNpF6O2z-24f6wexL-Y-M1EqMxplSkOGyGuay4jQLU5Iw-J_kyvVll27lKYE3otF8FA8A_qla9Ji84_zFmrpbp7_Kib9A9J2l_c9hTT9h52oJGK4eIJnVoEIfyIKti_zVWj34fMBG0/s320/IMG_1537.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">David, Mom, Jen, Tony</td></tr>
</tbody></table><br />
Happy 60th Mom!!! Keep up that young spirit that Reagan and Nolan love so much!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiljOrEY4MK86c3hC3w-YjbnfmJd7dsTD4j-YmRSKIiwp3dk-zjN-VYuDzk-NQ67G_dYWXVtbGlIqyvOa9KCxVhMPTeQ0vNVqvuZ7jvaXEdRinfuhDYmvFcZVrUdYDXHcz5AwEnHr6zJ3Y/s1600/IMG_1538.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiljOrEY4MK86c3hC3w-YjbnfmJd7dsTD4j-YmRSKIiwp3dk-zjN-VYuDzk-NQ67G_dYWXVtbGlIqyvOa9KCxVhMPTeQ0vNVqvuZ7jvaXEdRinfuhDYmvFcZVrUdYDXHcz5AwEnHr6zJ3Y/s320/IMG_1538.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Nolan, Reagan & cousin Lane</td></tr>
</tbody></table>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com1tag:blogger.com,1999:blog-5040658137813625012.post-24025528370081710642011-05-10T11:51:00.000-05:002011-05-10T11:51:28.419-05:00Doing Better....Well, today is definitely a new day. Reagan has been more of herself today than any day so far. When the respiratory therapist came in this morning to give her a breathing treatment, I took the opportunity to go down and get me some coffee & breakfast and asked Reagan if she wanted anything. We've asked her the last several days and she hasn't wanted anything but today, to my surprise, she said, yes, she wanted some sweet tea. She took about 3 sips of sweet tea and 2 bites of a peach. That's huge, as that is the first thing she's had in her mouth since we've been here. Then, I asked her if she felt like trying some soup for lunch today and she said yes. Looks like we're on our way. She's also down to between 1/2-1L of oxygen. She's still coughing up some yucky stuff. I got the impression from the doctors this morning that if she had a good day, they'd let her go home this evening. I told them I'd prefer to stay overnight and make sure she does ok. As back in February when she was hospitalized with pneumonia, she started making progress and we went home then ended up 4 days later right back in the hospital. Just trying to make sure she's ready this time. As well as trying to adjust her nighttime breathing treatments to less frequently and make sure she does ok with it so that I'm not up all night giving breathing treatments at home by myself. We're even going to get out of bed today and try to play with some toys that Child Life brought by. We're praying for a good day and a good night and hopefully, head home Wednesday. Thank you for all your prayers and support. <br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7aQZ9CTd0sxTo7OAHNu5mSJXAhj0ur-HNELpncCN711Y3aNlq_dBPxQwoN0JXk5F7XxEDm7l0ays21BAQSc01eINoc_XqaZc3MCqLDX8_MmD-75OTmXKGcuh4sRAGYneD0mWPoQgyfY0/s1600/IMG_1522.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240px" j8="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7aQZ9CTd0sxTo7OAHNu5mSJXAhj0ur-HNELpncCN711Y3aNlq_dBPxQwoN0JXk5F7XxEDm7l0ays21BAQSc01eINoc_XqaZc3MCqLDX8_MmD-75OTmXKGcuh4sRAGYneD0mWPoQgyfY0/s320/IMG_1522.JPG" width="320px" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Coloring a picture for bubba</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxktYIIc9g9U9C1lpWibG6TJJdIpr_hSsLUzUyW4IYpvNmil5t0vLHAYooZvK6OVUi6LD_ODr0QYfzRjcZe7KWCIpavgS86Xw93F3nECNWHbs6OEXNQmGWt_BUgtqiqGcYVLP71h7_rpE/s1600/IMG_1524.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240px" j8="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxktYIIc9g9U9C1lpWibG6TJJdIpr_hSsLUzUyW4IYpvNmil5t0vLHAYooZvK6OVUi6LD_ODr0QYfzRjcZe7KWCIpavgS86Xw93F3nECNWHbs6OEXNQmGWt_BUgtqiqGcYVLP71h7_rpE/s320/IMG_1524.JPG" width="320px" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Eating some yummy soup</td></tr>
</tbody></table>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-55144478984724799332011-05-07T23:30:00.000-05:002011-05-07T23:30:30.505-05:00There's no better medicine than your mom....I know it has been awhile since posting but as you know no news is usually good news. Since Reagan's birthday in February, we were able to spend some much needed time with Rod while he was home in late March/early April for his 2 wk R&R. We really enjoyed our time with Daddy and hated to see him go but he is due home in June for good. Thank you all for your support of and prayers for our troops!<br />
Unfortunately, Reagan is having another bad episode and is in the hospital once more. This time was really weird and unexpected because she really didn't have any symptoms before getting really sick. Last Wed. night it all started with her eyes having a green discharge. By Thurs. morning, her eyes were matted shut and I phoned the pediatrician who called in some eye drops for her for what we both assumed was pinkeye. All day Thurs. she was more tired than normal and would fall asleep on a whim which is not her norm. Her nose has been bleeding off and on lately (which happens occassionally due to her being on a daily aspirin regimen). By Th. early evening, she began vomiting old looking blood. I got her up in the recliner with me to try to get her nose to stop bleeding when I decided to put the pulsox on her and check her oxygen levels. They were in the mid to upper 80s. She immediately fell back asleep in my arms and would only wake to vomit this old blood and then fall back asleep again. She also had a fever of 99.1, then 99.8 before leaving the house to head to the ER in Austin. Her oxygen levels also her dropped to about 79 before leaving and was holding steady. Upon arriving at the ER Thur. night around 9pm, Reagan's temp was 103.9 and needed 3L of oxygen. A chest x-ray was done which didn't look any different from the one in Feb. when we were here with pneumonia. An iv. was started and blood work done. Nothing showed up on the bloodwork other than she was a little dehydrated. It was suspected she had some kind of virus (possibly adenovirus) but because of her immune system was given a round of antibiotics just to be safe. We finally were admitted and sent to a room around 2:30am. By Friday, Reagan had a rougher time. Her work of breathing had increased and she was requiring more oxygen support. In fact, we had to switch from a nasal cannula to a mask. During the day Friday, she also spiked another fever so another x-ray was done to see if anything had changed. This time, her xray showed a possible pneumonia in her lower left lung. This is Reagan's worst area of her lungs because part of it has died and calcified from not getting adequate blood flow before her heart was fully repaired. The decision was made to keep her on the antibiotic in case this truly was a pneumonia. When I left for the Ronald McDonald House last night to get my first full nights sleep in 36 hours, Reagan was on 10L of oxygen thru the mask. By this morning, to my surprise, I walked in to see her back on the nasal cannnula on 2L. She had a better night and no more fevers. Her vomiting has slowed slightly but now is starting to cough up really yucky stuff. She's getting breathing treatments every 4 hrs and vest treatments during the day to help break things up in her lungs. She still is feeling pretty cruddy and still not eating, has only been getting i.v. fluids. Hopefully, she will begin to feel like eating or taking formula thru her g-tube so she can get some nutrition and energy to get better. Special thanks to all my village that helps me with Nolan in times like these (Nan & Pop, MiMi & PawPaw, Aunt Kay & Mrs. Debra Moore). <br />
Looks like I'll be spending this Mother's Day in the hospital as I was this time last year. Reagan received her full repair of her heart on May 5, 2010 and was still on the ventilator on Mother's Day last year. I am thankful she is not on the ventilator this time but pray she starts to feel better real soon as she looks so pathetic and sick. <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8FqpwSg_yVAe2uFlLZCfUct-WLpTC4gJlEdv81-QBIXvLnrW0JMd-X0Zq7MQxRGbeUUgrWfvFgoF7tmQN9Jrv_TPtV_jV9JVaoVDi7Kmp6wXjC5fri7z-5YvgdYipyZV7Lbdg9rbYYNQ/s1600/IMG_1518.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" j8="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8FqpwSg_yVAe2uFlLZCfUct-WLpTC4gJlEdv81-QBIXvLnrW0JMd-X0Zq7MQxRGbeUUgrWfvFgoF7tmQN9Jrv_TPtV_jV9JVaoVDi7Kmp6wXjC5fri7z-5YvgdYipyZV7Lbdg9rbYYNQ/s320/IMG_1518.JPG" width="240" /></a></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">Let me conclude by wishing all my mom friends a Happy Mother's Day and a special prayer to one of our heart moms, Marcia, as her sweet Anna (age 7) went to be with Jesus recently. Marcia, I appreciate your sweet messages you always leave and will be thinking of you tomorrow.</div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">Also, I'd like to thank my sweet Mom for giving me life 35 yrs. ago and for always being there for me growing up and now being there for me and my babies. I love you Mom!!! </div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">Lastly, while checking my emails from the hospital room, I received this in an email from the Ronald McDonald House and found it quite fitting so wanted to share:</div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She holds your hand when you get a shot.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She hugs you when you're scared a lot.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She plays games to help you pass the time.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She knows your favorite nursery rhyme.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She always remembers to bring your favorite stuffed animal sheep.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">She lays with you in your hospital bed until you fall asleep.</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div><div align="center" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;">NOTHING CAN MAKE A CHILD FEEL BETTER QUITE LIKE A MOM.</div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com2tag:blogger.com,1999:blog-5040658137813625012.post-73187658713495865862011-02-15T12:13:00.000-06:002011-02-15T12:13:44.000-06:00HAPPY BIRTHDAY SWEET REAGAN!!!!<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMt6sO-PqZY6rha52kZTzhNxATtVJ9I5MKJYUWyK9YGm9LLbuMJURrWeN_JuXSqCGaDfZbJKMMcDOO5SK7ZnJKiV2fJeEMDlj9dXlG62K4lgDaYZoXqwJkLN5S4YTUPqEFz31e8mxkZ1c/s1600/DSC04722.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMt6sO-PqZY6rha52kZTzhNxATtVJ9I5MKJYUWyK9YGm9LLbuMJURrWeN_JuXSqCGaDfZbJKMMcDOO5SK7ZnJKiV2fJeEMDlj9dXlG62K4lgDaYZoXqwJkLN5S4YTUPqEFz31e8mxkZ1c/s320/DSC04722.JPG" width="240" /></a></div><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><br />
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<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;">I cannot believe, even as I'm typing this, that my baby girl is 4 years old today. What an adventurous 4 years it has been! She has definitely proved to be our strong-willed, go-getter, never give up child and for that we are truly thankful as that spirit has gotten her here today. I know no better way than to reflect on the past 4 yrs. than to show you some pics. There were so many, I had a hard time deciding but think it shows her journey quite well.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4NQpTmpZRByZzoJ9vnwnaF1lZIUdW-V08tE_v1mDsuu_Yxm4f99L9U0imn0PvF-8UFZT9ul9U1hBQaj5LVEpHipqu23xmlG7nUW-MWHmUQ4ogTD2BkJWUv3fIRQTs59-Arm0TBmkzCII/s1600/Fam+%25281618%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4NQpTmpZRByZzoJ9vnwnaF1lZIUdW-V08tE_v1mDsuu_Yxm4f99L9U0imn0PvF-8UFZT9ul9U1hBQaj5LVEpHipqu23xmlG7nUW-MWHmUQ4ogTD2BkJWUv3fIRQTs59-Arm0TBmkzCII/s320/Fam+%25281618%2529.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Meeting Nolan for the first time at 10 days old</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_QeTUBiEMJHRXoLQPNKJpQJ3LQapR4CFakELNVau6putYlcP3YwJuVQGaY-kh7_Gb_N3h8mAL_pJo4-_60mguCNM0MyxOvo1z1OhC0kS63Z9DpAKRt6q-oK9_GNeOth0BskUvLnoIdjE/s1600/Fam+%25282293%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_QeTUBiEMJHRXoLQPNKJpQJ3LQapR4CFakELNVau6putYlcP3YwJuVQGaY-kh7_Gb_N3h8mAL_pJo4-_60mguCNM0MyxOvo1z1OhC0kS63Z9DpAKRt6q-oK9_GNeOth0BskUvLnoIdjE/s320/Fam+%25282293%2529.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">After 1st heart surgery (4 mos. old)</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-TgrH6M6pJ6yteszB_yA7zNFm4U8ezZNXdb493Ffr-Hs_PhXojyifJ7sbKY9NJKwPNwSTidC_CJMmgDyqkh_AXo2Fik9QWzBrFh7PtPO5SGYCHOrgjWzh2CCEqc9qyZY053eOJUdj7ds/s1600/Fam+%25282255%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-TgrH6M6pJ6yteszB_yA7zNFm4U8ezZNXdb493Ffr-Hs_PhXojyifJ7sbKY9NJKwPNwSTidC_CJMmgDyqkh_AXo2Fik9QWzBrFh7PtPO5SGYCHOrgjWzh2CCEqc9qyZY053eOJUdj7ds/s320/Fam+%25282255%2529.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">What have I gotten myself into?</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUgC7jj0_QeuAmI41LvaUwK3JL_c-OVBncG912q7A_jK9E2dlYFI2M-Es2ut4ZsRI3xcG9NvKsDUDYIpKR-tlenFazcI-dTPT2QYVF8vKDFBwenc33WUcStcsaGJCSl5WN3TbF1ZTQpZU/s1600/Fam+%25283014%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUgC7jj0_QeuAmI41LvaUwK3JL_c-OVBncG912q7A_jK9E2dlYFI2M-Es2ut4ZsRI3xcG9NvKsDUDYIpKR-tlenFazcI-dTPT2QYVF8vKDFBwenc33WUcStcsaGJCSl5WN3TbF1ZTQpZU/s320/Fam+%25283014%2529.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not always happy about the situation....<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBRey3ySRCshgizoFJuVJym2FpwJFQNLfC-D88c8gh2EKhtZuCvRyQr_lU5Qkg-wGeYZPNv7iFQg-GZUfOB08C8o67xjZeXufJMNT2WKBobBJjve3V7TsnReu-byrzminu9VZKS2be8tk/s1600/Fam+%25281923%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBRey3ySRCshgizoFJuVJym2FpwJFQNLfC-D88c8gh2EKhtZuCvRyQr_lU5Qkg-wGeYZPNv7iFQg-GZUfOB08C8o67xjZeXufJMNT2WKBobBJjve3V7TsnReu-byrzminu9VZKS2be8tk/s320/Fam+%25281923%2529.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">But goes with the flow, nonetheless!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtriD8S_ZlTe5zjq4EuUPkAGdJY9qXbPBeLheSQwl2KqnkIwtx7SW61bKeMjlxjku87zDbJPeVIhgCc2ZU6XCY5_F47OUiip6NXjJSIUrxYtCFIN943A1hrDr-AAfAZ0SoZxpkSLVcePw/s1600/Fam+%25282436%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtriD8S_ZlTe5zjq4EuUPkAGdJY9qXbPBeLheSQwl2KqnkIwtx7SW61bKeMjlxjku87zDbJPeVIhgCc2ZU6XCY5_F47OUiip6NXjJSIUrxYtCFIN943A1hrDr-AAfAZ0SoZxpkSLVcePw/s320/Fam+%25282436%2529.JPG" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Happy for family times...<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghGLLMLQteHw1McHICi2vJ_QQ9vj-FYMG78fcevdvbhdm70bBFnSyfK1T20a9IQH2lrQY-rM43jowKF1XwrK3xqSl3fcvGFpr3TfJfBlmFoXTueZhEfmVzsXn-sBrRQMC_ov1l5ZrYe8E/s1600/Fam+%25282288%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghGLLMLQteHw1McHICi2vJ_QQ9vj-FYMG78fcevdvbhdm70bBFnSyfK1T20a9IQH2lrQY-rM43jowKF1XwrK3xqSl3fcvGFpr3TfJfBlmFoXTueZhEfmVzsXn-sBrRQMC_ov1l5ZrYe8E/s320/Fam+%25282288%2529.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">And thankful for home times!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWOYaavMBZ_rVvd_JBgDRnWuiSFPaAPj65CzBPmDiAmCeeafMysLmxstGejZ0VXbOHVCnsmZrsuHBc8X4jZRNc1o0LiLalYBtEfo1GDO0ozRjuxjiuOmQGjIvgxsfi6heUSWM0mjMXTh8/s1600/Fam+%25283246%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWOYaavMBZ_rVvd_JBgDRnWuiSFPaAPj65CzBPmDiAmCeeafMysLmxstGejZ0VXbOHVCnsmZrsuHBc8X4jZRNc1o0LiLalYBtEfo1GDO0ozRjuxjiuOmQGjIvgxsfi6heUSWM0mjMXTh8/s320/Fam+%25283246%2529.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Putting up with the hospital time...<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnz9gJUqwudLHbY1kDAeJzaHtf4JIyl9jB88mZBeWq43mwkswDNMP8Plc97fxqWkTeFv2Bh4uaMbP8J-UEcDjHPeHAF94xlebNs5iZL6A3Fv4gUqJKjQ1kiHNDECVCIwCCxGaHraQvNh4/s1600/Fam+%25281951%2529.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnz9gJUqwudLHbY1kDAeJzaHtf4JIyl9jB88mZBeWq43mwkswDNMP8Plc97fxqWkTeFv2Bh4uaMbP8J-UEcDjHPeHAF94xlebNs5iZL6A3Fv4gUqJKjQ1kiHNDECVCIwCCxGaHraQvNh4/s320/Fam+%25281951%2529.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">And hospital baths...<br />
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<div class="separator" style="clear: both; text-align: center;"></div><div style="text-align: center;">Maybe that's why she makes the most of her time when not in the hospital...</div><br />
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</div><div class="separator" style="clear: both; text-align: center;">We have so many to thank who've helped along the way</div><div class="separator" style="clear: both; text-align: center;">It's been a wild ride, but they've been there from day to day.</div><div class="separator" style="clear: both; text-align: center;"><br />
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<tr><td class="tr-caption" style="text-align: center;">Ronald McDonald House Charities</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgogP-eRHTtSRrRSlfCO2qlL9LrJXwRgvkZN24bjlGuTt-5S_dHrMU23fE6ors8j_YLMY94LtqWPmUpfo_ieDBtAuW7rJTYalA6wcoCGtp2DVe-hRQl4e_XtcA6oSZ7xjGcuVHbhiOTQg/s1600/Fam+%25281316%2529.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgogP-eRHTtSRrRSlfCO2qlL9LrJXwRgvkZN24bjlGuTt-5S_dHrMU23fE6ors8j_YLMY94LtqWPmUpfo_ieDBtAuW7rJTYalA6wcoCGtp2DVe-hRQl4e_XtcA6oSZ7xjGcuVHbhiOTQg/s320/Fam+%25281316%2529.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Wilsonart International Inc<br />
<br />
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<span class="Apple-style-span" style="font-size: small;">Our Lord & Savior Jesus Christ<br />
Early Childhood Intervention Therapists & Staff<br />
Hope Therapy Therapists & Staff<br />
Donna Ingram, PT<br />
Temple Independent School District Homebound Teacher, Melissa Prather<br />
Dell Children's Medical Center PICU & IMC Attendings, Nurses, RT's & Staff<br />
Lucile Packard Children's Hospital CVICU & 3West Attendings, Nurses, RT's & Staff<br />
Dr. Frank Hanley, miracle worker and renowned heart surgeon<br />
Children's Cardiology Associates & Dr. Gregory Johnson<br />
Austin Children's Chest Associates & Dr. Jordan Scalo<br />
Dr. Rebecca Riser, Pediatrician & Nurse Shannon<br />
Wonderful Del Norte Neighborhood Family<br />
Excellent School Family at Kennedy-Powell Elementary<br />
Church Family At Temple Bible Church<br />
Open Range Cowboy Church<br />
</span><br />
<span class="Apple-style-span" style="font-size: small;"></span><br />
<span class="Apple-style-span" style="font-size: small;"><div style="text-align: center;">Family & Friends who encompass alot of you </div><div style="text-align: center;">(Don't think for one minute you're any less important because you fall in this category... for you are the ones who hold us up in prayer, leave us encouraging messages, take care of Nolan & bring us meals during the crazy times)</div></span><br />
<div style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">And last but not least, our extended heart family we've come to know through this all...thank you for your support, suggestions & first hand experience at all this...You all know what it's truly like to go down this road and we love & pray the best for you all!</span></div><br />
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</div><div style="text-align: center;"><i><b><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">Thank you Lord for this day. For you have truly taught us ... </span></span></b></i></div><div style="text-align: center;"><i><b><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">Do not worry about tomorrow, for tomorrow has enough troubles of its own. </span></span></b></i></div></td></tr>
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</div>Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com7tag:blogger.com,1999:blog-5040658137813625012.post-36736093142131099292011-02-09T22:31:00.001-06:002011-02-09T22:33:45.576-06:00The Waiting GameWell, it's Wednesday evening and I am actually typing this post from home. No, Reagan is not here with me. She is still in the hospital but doing well enough for me to come home for the evening and hang out with Nolan. MiMi & PawPaw are on hospital duty tonight in Austin. Reagan's lungs are starting to sound better and she is now down to 1L of oxygen. Although we do have home oxygen setup the doctor would like for Reagan to be off of the oxygen this time before leaving the hospital.. just more as a sign that hopefully she has conquered this bug this time. Today they switched her i.v. antibiotic to oral to be able to watch her the next few days on an oral dose to ensure she does ok. No one has officially said, but I am thinking we may be able to go home Friday or Saturday. Today I brought her shoes to the hospital and let her get out of bed a little and walk around the room. She mainly wanted to climb on the pull-out sofa in the room to look out the window and her and MiMi made up a fun game of swinging the oxygen tubing around like a jumprope. Reagan thought it was the funniest thing! Oh the things you do to entertain when stuck in a hospital room.<br />
**Not the best pic but gives you an idea<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisGRiL8VAH7EPm6gjhhLU223iD7DZGt8QFJ1E2PqNZue9JyM2HQSSMDszkFP9yI7Kv1C8OpVT0u-IUSVUR2UMUC272zrl51hhuRaRz9f_eQVHqXbk0cvRozBswK4QeFq-guagvrSrci00/s1600/photo.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisGRiL8VAH7EPm6gjhhLU223iD7DZGt8QFJ1E2PqNZue9JyM2HQSSMDszkFP9yI7Kv1C8OpVT0u-IUSVUR2UMUC272zrl51hhuRaRz9f_eQVHqXbk0cvRozBswK4QeFq-guagvrSrci00/s1600/photo.JPG" /></a></div><br />
Well, I better get some rest in my own bed while I can...it's back to RMH tomorrow night.Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com5tag:blogger.com,1999:blog-5040658137813625012.post-70342042003284002012011-02-08T13:21:00.000-06:002011-02-08T13:21:09.226-06:00Deja Vu....Well, unfortunately, I'm here again to report that Reagan is back in the hospital. Our time back home was short-lived but long enough to enjoy a snow day with Nolan & of course the Super Bowl.<br />
Monday afternoon Reagan began vomiting and looking weak and pale again. When I put her on the pulsox her oxygen levels were 78-79 so I immediately put oxygen on her but had to put her on 2L to get her levels above 90. She had goosebumps up and own her arms and had labored shallow breathing. Upon arriving in the ER Monday afternoon, she had 102.3 temp. She got a chest xray which I've heard looked worse than the one last week. Not sure if the oral antibiotics at home weren't strong enough or if she caught something else. They did however get an i.v. started with i.v. fluids, because she also had not wanted anything to eat Monday, as well as another round of the i.v. antibiotic Rocephin. Late last night, once we finally got moved to a room in the Intermediate Care Unit (IMC), she had perked up and began eating a little jello and drinking small sips of juice. We finally got to bed about 1am and Reagan slept in until 11am this morning.. much needed rest, I'm sure. It's 1:15pm and I am over checking into our room at Ronald McDonald House. Even though Reagan is sick, there are so many kids much sicker than she so the doctors have actually not even rounded on her yet so I'm not sure what the plan of action is this time. We totally are fine with waiting as Reagan has been that baby before that needed "all hands on deck" in emergent situations so we sit and wait our turn. I will update as I know more. For now, she is feeling and acting much better. Sitting up, eating, coloring and asking to go outside and jump. Unfortunately though, her lungs sound like a washing machine full of mucus and junk that needs clearing out & she's still requiring 2 L of oxygen. She is getting breathing treatments every 4 hrs. with the vest. We are hoping this time it will knock all of that junk loose so she can get over this. Next week, Reagan will turn 4 yrs. old-- such a miraculous feat indeed and we are anxious to be able to get home and celebrate it the right way instead of in the hospital!<br />
Thank you all again for your support and prayers & thank you to Aunt Kay, MiMi & PawPaw, Miss Katie and Mrs. Debra for helping out with both my babies. It takes a village and I couldn't do it without all of you!Reagan Gracehttp://www.blogger.com/profile/08057369010641559167noreply@blogger.com5