Wednesday, November 23, 2011

Truly Thankful....

Happy Thanksgiving everyone!  Hope everyone is enjoying time with their family this Thanksgiving.  We are having a houseful starting later today.  It is so great to be able to be home and healthy with our family rather than in the hospital.  I know, however, that as I type this, there are those families that are spending this Thanksgiving in the hospital.  We have some great friends, the Nelson family, whom we met in California, that are giving back this year and delivering meals to families whose kids are in the hospital this year at Lucile Packard Children's Hospital where we go for Reagan's heart surgeries. If  you feel like contributing to this great cause, simply click on the Nelson family above and it will lead you to their blog where you can find out more.
We are also thankful Rod is home this year for Thanksgiving.  However, know there are soldiers separated from their families this year.  Please remember to be in prayer for these soldiers and their families as well as the families spending Thanksgiving in the hospital.
As far as Reagan goes, we had a little setback in early October.  She was jumping on the trampoline with her brother one afternoon when she fractured her tibia.
Fractured tibia
She had to wear a full leg cast for the next 5 weeks until it healed.  

Thankfully, she is now out of her cast, and back to trying to keep up with her brother.  We are thankful this was a "normal" medical issue to deal with for a change.  How awesome that Reagan has been out of the hospital since May of this year.  Other than her night's stay after her heart cath in July, we have remained hospital-free to which we offer many thanks for!!
After Reagan's hospital stay back in May for a respiratory illness, we received the home vest machine to do at home with her breathing treatments.  We are praying this will be helpful in keeping her from being hospitalized this winter with any respiratory infections.  Winter always seems to be a "booger"! (pun intended :)
As we approach this Thanksgiving, we are thankful for our little miracle God gave us.  She is such an inspiration to us daily....always happy, always trying, never gives up!!  We are also thankful that we were able to be home in Temple, Tx the first five years of her life around family and friends that have supported us unconditionally along this journey.  We are saddened as we host Thanksgiving that this will be our last year to do so for awhile.  Rod will be leaving in early January to head up to Virginia and report for duty at Ft. Belvoir.  The kids and I will follow in June upon completion of the school year.  It will be a huge change for us but know God will be with us all the way.  Please pray for Rod as he will be away from his family once more until we come later in the year.  Also, for Reagan & I as we leave for Reagan's next heart cath in California on Jan 20.  We pray her arteries, especially her coronary arteries, have grown and not narrowed so that this cath will be uneventful.
I know I have used the word "thankful" many times in this post, but as it says in 1 Thessalonians 5:18, "In EVERYTHING give thanks".  I am just saddened that I am using Thanksgiving as my outlet to do so, as I should do it daily!
Blessings to you & yours this Thanksgiving!!  Thanks for stopping in.

Wednesday, September 21, 2011

Lots of News.......

Just checking in to let everyone know how well Reagan is doing.  Haven't updated in awhile but we have been busy enjoying having Daddy back home from Afghanistan and kicking off the new school year with all of the activities that go along with a new year.  Nolan (2nd grade) & Reagan (Pre-K) both started back to school in late Aug.  They are both enjoying school and doing so well.  

Miss Reagan does her work at home with Mrs. Melissa, her homebound teacher, that comes 4 days a week for a 30 min. session.  And let me tell you, the girl learns alot in those 30 min.  Last year, she basically mastered recognition of all her shapes, colors, letters, numbers, etc.  Mrs. Melissa is now moving on to tougher objectives like counting, more/less, reading small sight words, reading comprehension, and doing it all through fun themes.  As mentioned before, I used a program this summer with Reagan called Handwriting without Tears, to help her improve her hand control, hand strength, & writing letters & numbers.  She has done so well as you can see.

Because she liked the idea of "homeschool" so much and requests it daily, I decided I would continue to teach her daily lessons during the school year as well.  I am trying to focus on phonics, sequencing of stories, rebus reading, counting, one-to-one correspondence, more/less, etc.  I do have my degree in early childhood & elementary education so I figure maybe I should put to use the ability God gave me to teach.  After all, parents are their child's first teachers!
On top of school, Reagan still has her "ther-wa-pa-we" (a.k.a. therapy). She goes to a clinic for Speech & Occupational Therapy twice a week and has made huge progress in both.  Thank you Mrs. Liz, Lauren, Emily & Meg for all you do!!  It's definitely paying off.  Reagan also has Physical Therapy once a week with Ms. Donna who has brought Reagan, as a baby, from laying on the ground crying because she didn't know how to set herself up, to now walking, running, & even jumping.  Because we had such a hot summer in Texas this year, we swam alot and Reagan has really gotten used to the water now, including blowing bubbles, going under & jumping off the side.  Due to her acceptance of the water right now, Ms. Donna is taking her swimming for her therapy when her schedule allows & building up those muscles even more.  Ms. Donna, you are the greatest!!
Over the last year Reagan did gymnastics once a week to help improve her strength, endurance & body control.  This year, we decided we'd switched gears and try ballet.  She now takes a Pre-Ballet class once a week with 4 other little girls and loves it!  She is doing great.  I can't wait to see how she's doing come recital time next May.  It ought to be interesting!!
Speaking of next year, I guess there is no better time than now to officially announce that we will be moving next year.  Rod has orders to Ft. Belvoir, VA (Washington, DC area).  He has to report in January but we have decided the kids and I will stay in Texas until summer so both kids can finish their school year.  We are all saddened by the move as we are native Texans and have been blessed to have been here the last 7 yrs.  The positive in this move is that Daddy Rod won't have to deploy for 3 yrs. as Ft. Belvoir is a non-deployable base.  I have known for almost a year about the move but have had to have alot of prayer/quiet times about it as I was not handling it very well.  There are not many bases we can go with Reagan due to all the services/specialists she requires and the Washington, D.C. area not only has everything she will need but also has one of the top ranked school districts in the nation.  God has had to work on my heart in getting me to be o.k. with the move but I know He will not lead us where He has not already prepared a table before us.  Just the thought of starting over with all new therapists, teachers, doctors & hospitals, etc. makes me a little- or should I say alot- nervous.  God is at work though,as I can already see, because the last time we saw Reagan's cardiologist in Austin he informed me that one of the cardiologists from the group in D.C. will be joining the group of drs. in Austin next year and he would talk with him about who would make a great cardiologist for Reagan when we move. Awesome!!  I think that's the "table" I referred to earlier being set before we come.
In closing, I'd like to thank all of you who prayed for our friend, Callie.  She had a successful surgery but did have a very scary complication 4 days later through which she came through beautifully! I know it is your prayers and the prayers of many that got Callie & her parents through that tough time.
Thanks again!

Tuesday, August 2, 2011

Prayers Please!!

Hey everyone,
I know how much all of you have been a support and prayer team for us with Reagan along her journey so I wanted to let you know about a heart friend of ours who will be having surgery tomorrow.  Callie Carver, pictured here, as she flew out to California last week from her home in Florida, is one of our sweet friends we've met along this journey.  We first met Callie when she was just a baby at the Ronald McDonald House in California.  Reagan & Callie share the same heart surgeon, Dr. Hanley.  Tomorrow, Callie will be having a major heart surgery & I want to ask for your prayers for her, her parents Will & Sarah, as well as the doctors, nurses & everyone caring for her.  Callie has had several surgeries in California but never gone on bypass during any of these because it was too risky for her little body.  In tomorrow's surgery, she will go on bypass for the first time during her surgery to remove 2 shunts and replace with a central shunt.  I know what anxiety her parents are feeling as they approach tomorrow and all the while their daughter not knowing what's about to happen.  It's a scary place, we parents have to go, on surgery days, but know we must go there in order to move on to more happy days at home with our children.  Please pray for Miss Callie, Will & Sarah & all of her care team.  Thank you all!!!

Wednesday, July 27, 2011

Home Sweet Home....

Just realized I better do an update and tell everyone we did make it home.  Reagan's stay overnight in the hospital following her cath was uneventful and so last Thurs. morning she had a lung profusion scan and then she was discharged.  We took it easy that day and the next to allow her to catch up from her cath.  Then on Friday night, the boys (Nolan & Rod) were able to go to a Giants game

and the girls (Reagan & Jen) stayed in for a girls night in the hotel.
Room service and a movie

Then on Saturday we flew home.
This is actually from our trip out, but Reagan did the same thing on both flights- slept!!

Here are a few pics from our trip:

Reagan checking out the fountains near our hotel
Her fearless brother truly experiencing them

  
Acting crazy

Just relaxing
Frog Fountain at Stanford Shopping Center near hospital
Morning of cath, all dressed and waiting to go
How we left our baby girl in the cath lab after watching her be put to sleep with the mask
Our friends Anna & Hunter who we met last summer.  Hunter boy (whose heart is not fixed yet) was in the hospital for a dehydration issue and so we got to visit them while Reagan was in the cath lab.  Anna's husband, Rob, is in the Marines & so we share a common bond in two ways.
Reagan in recovery room after cath trying to wave
Discharge day- so happy to be out of that place
Ready to party
The greatest son & big brother in the world!
Hanging out in airport, ready to fly back home to Texas!

I know it's alot of pics but since I couldn't add them all week, I had so many to choose from.  Oh well!

It wasn't until we got home that I was able to read over Reagan's cath report and actually read the numbers.  I was quite shocked to find that her coronary artery that the cardiologist was so concerned about and therefore ended up ballooning only measured .35 mm instead of 1.4mm.  After the dilation, thankfully, it now measures 1.2mm.  I am so thankful she had the checkup when she did because if that artery were to have closed and cut off blood supply to her heart, she could have a massive heart attack.  I am also thankful to the doctors who commit their life's work to these kids and use their talents to intervene and help them.  Thank you Dr. Perry, Dr. Hanley & many others!!!
It is now our prayer that as Reagan grows, her vessels will grow with her and not continue to narrow so that she can get adequate blood supply to all the important areas of her little body.  She is such a fighter and miracle!  Rod and I stand in awe of her daily.  Because of that tough spirit of hers, however, she keeps us on our toes and is already 4 going on 14.  I pray by her teenage years, her heart will not give us trouble as she will probably be full of it herself!!
Thanks again to all for your prayers and support through this journey!
-Rod, Jen, Nolan & Reagan







Wednesday, July 20, 2011

Our Week So Far........

Hey everyone,
So sorry I have not updated since leaving for California.  We did not bring our laptop as it is pretty much shot from spending a year in Afghanistan with Rod.  There are no computers at our hotel so we have had to wait until being at the hospital to use their computers. I also don't have a way to add pics from this computer. So sad, as I have taken some good ones since being here. Oh well, will add them later.
Since arriving, we have totally enjoyed the beautiful California weather.  We've been wearing jeans and jackets, so different from Texas. Our first day, after stopping at the first In-N-Out Burger we could find, we finally made it to our hotel and spend the rest of the day exploring the grounds around the hotel which are quite nice.  The boys, Nolan & Rod, brought their baseball gloves so they have taken every opportunity to go out and play catch since the weather is so great. 
Sunday morning, we were able to watch the Women's World Cup game in our hotel lobby on the big screen with other USA fans.  Unfortunately, we lost but it was a fun game to watch.  We then walked to the nearby movie theater and took in a movie together as a family.
Monday, we had planned to go up to San Francisco for the afternoon and catch the Giants game that night.  Unfortunately, we were having trouble getting tickets online so decided to try our luck at the gate. Our luck turned bad, as the only tickets available were Standing Room only.  Rod & I were not up for spending 3 hrs. standing with kids so decided we would shoot for Friday night's game instead.  We then went to a nearby park and while Reagan played, the boys played catch again near the park.  It was so great being out as a family and letting the kids play without sweating to death until.....a little boy accidentally knocked Reagan over at the park.  She was on a platform about one step high and lost her balance and fell to the ground.  She immediately began crying and had a bloody nose.  After finally getting her calmed down, we decided to find somewhere to have dinner and then head back to our hotel in San Jose & call it a night.  Fortunately, we found a nice casual place where we could sit outside and eat with our bloody nosed daughter.  The place we ate were kind enough to give us a cloth to put ice in to try to stop the bleeding.  As Reagan takes aspirin daily, it was quite the challenge.  In fact, it wasn't until we finally got back to our hotel, bathed her, and held her down with ice on her nose for quite awhile, did it finally quit bleeding.  We put a band-aid across her nose to protect it from getting scraped again.  The boys were teasing her and calling her the villain on the new Harry Potter movie because she looked like she didn't have a nose. To which, she let them know how she felt about that comment.  Ha!
Tuesday, was Reagan's appt. in the Heart Center.  She got an echo and we met with the cath/anesthesia team about her cath.  We then were able to enjoy a little outside time again by our hotel pool.  It was a little cool to swim but felt good just basking in the sun.  That night, we were able to connect with some sweet heart friends we have met through this journey, the Nelsons.  Justin & Victoria's daughter Moriah has the same heart condition as Reagan and are such a sweet family and testimony to persevering this life with a special needs daughter.  It was great to share the company of their family and see their newest addition, baby brother Jadon, whose only 2 wks. old.  Thank you Nelsons for a fun night of food, friends & fellowship!
And then we make it to today, Wednesday, which has been quite a day in itself.  We have been at the hospital since 7am this morning.  Reagan was the first cath of the day at 8:30.  They had reserved 4 hrs. for her in the cath lab but as we know, Reagan usually keeps the doctors longer than expected.  The cath showed all good numbers as far as pressures in her heart but it unfortunately showed she had narrowings in 4 of her pulmonary arteries which they were able to balloon and open up more.  We then got the dreaded call about the time she should be finished telling us the cardiologist wanted to talk with us.  He told us Reagan's coronary arteries, which Dr. Hanley severed in her last surgery but then miraculously repaired and saved her life, had a narrowing that needed to be addressed. We had to sign a new consent for them to go in and balloon that artery with hopes that it would open up and allow more flow.  Otherwise, a stent would need to be placed in that artery and that is not a favorable option as those tend to clot more often.  This is something adult cardiologist deal with more & so one was called in to work along side the pediatric cardiologist to attempt ballooning the coronary artery.  We signed the consent, said a prayer together, and then anxiously awaited the results.  It was a stressful time and not what we had anticipated at all, but finally we got the call that they were done and it went well.  The cardiologist then took us back into the imaging room and showed us all the pics from the cath and explained each one.  The before/after of each artery that was narrowed and then the ballooning of the coronary artery.  Oh, by the way, they also explored Reagan's blood clot which they determined to not be a clot after all, but a narrowing and so they also ballooned that area and found better results afterwards.  We are so thankful this intervention helped for now and pray that in the coming weeks, months, her vessels will continue to grow and not narrow again.  Because of the issue with her coronary artery, we now will have to come back in 6 months for another cath to be sure these areas are doing ok. She is spending the night and will have a lung profusion scan done tomorrow and then hopefully discharge.  She had some bleeding and discomfort at her cath site so has had to lay flat for longer than she wants.  Hopefully, she will be able to rest and have an uneventful night.
We are sooooooo thankful for all of you, your supportive messages and prayers especially!!  Thanks again. 

Friday, July 15, 2011

California Bound....

I know it's been awhile since updating but as they say, no news is usually good news.  We have managed to stay out of the hospital since May.  We have been very busy at home ever since.
Finishing up the school year
Reagan & her homebound teacher, Mrs. Melissa

Since Reagan has done so well learning lots of things from Mrs. Melissa all year, I decided I would start a homeschool program with Reagan over the summer to help retain as well as add to her knowledge base.  She is so smart and loves learning!  We have successfully done a homeschool lesson M-Th every week this summer.  I am using the program Handwriting without Tears which was developed by Occupational Therapists.  It has been great for Reagan and she loves it.  In fact, if I get busy she reminds me, "We have to do homeschool."
In addition to doing homeschool, Reagan attends her gymnastics & physical therapy once a week, speech & occupational therapy twice a week and we've been going to the public library this summer which she enjoys.
Between Reagan and Nolan's schedules, we stay quite busy and Reagan enjoys being her brother's #1 fan
at his baseball games
at his track meets
or simply playing a football game together at home

In addition to adoring her brother Nolan, she loves her daddy.  We had the joy of welcoming daddy home from Afghanistan in July.  It was a long year but we all survived!
We have enjoyed our time back together as a family since Daddy returned home in late June.  
Welcome Home party
Horseshoe Bay Resort


and even a trip to the nail salon (with Daddy) to get her nails done in prep for our trip to California
Yes, I did say California.  Reagan is actually overdue for her one year post surgery heart cath.  But because Rod was still deployed, we were able to push her checkup to July.  Last May 2010, Reagan got her heart fully repaired.  It is routine to have a heart cath done one year later to check on her heart, vessels, and in her case this time, her blood clot.  We will leave our house before the sun comes up in the morning to head to the airport.  The four of us will all fly to California for Reagan's checkup and heart cath this coming week.  While there, we will try to enjoy the nice California weather and time together as a family.  Her appt. in the heart clinic is next Tues. and her cath is scheduled for Wednesday.  We will keep you posted on the results.  To all our California connections, The Shirleys & The Nelsons, we look forward to trying to see you while there this next week.
We appreciate all your prayers for Reagan, her doctors & nurses and our travel safety. Thanks for looking in!!

Monday, May 16, 2011

We are HOME

Just so you know...we are HOME!!  Reagan was discharged last Wednesday around 1:30pm and we were home just as Nolan was getting in from school that day.  I know Reagan was glad to see her brother. Although Reagan was acting like she was ready to run a marathon, she was still on 1/2L of oxygen & still had a little recovering to do.  We have been laying low and hanging out!
We have been trying for some time to get the dr. to order Reagan a vest and machine for home to do breathing treatments like she does when she's sick in the hospital. This time our prayers were answered!!  Reagan's vest & machine arrived on my doorstep Friday morning and she got her first home vest treatment within the hour.
It's pink!!!!

Reagan is very responsive to these treatments and it seems they are what help her get better each time while in the hospital.  Hopefully, by having one at  home, we can avoid the hospital next time she comes down with something respiratory.
In addition to just hanging out, my mom's 60th birthday is this week, so we (my brothers and I) surprised her this weekend with a party at my house.  It was good to all be together for something other than Thanksgiving and Christmas.
David, Mom, Jen, Tony

Happy 60th Mom!!!  Keep up that young spirit that Reagan and Nolan love so much!
Nolan, Reagan & cousin Lane

Tuesday, May 10, 2011

Doing Better....

Well, today is definitely a new day.  Reagan has been more of herself today than any day so far.  When the respiratory therapist came in this morning to give her a breathing treatment, I took the opportunity to go down and get me some coffee & breakfast and asked Reagan if she wanted anything.  We've asked her the last several days and she hasn't wanted anything but today, to my surprise, she said, yes, she wanted some sweet tea.  She took about 3 sips of sweet tea and 2 bites of a peach.  That's huge, as that is the first thing she's had in her mouth since we've been here.  Then, I asked her if she felt like trying some soup for lunch today and she said yes.  Looks like we're on our way.  She's also down to between 1/2-1L of oxygen.  She's still coughing up some yucky stuff.  I got the impression from the doctors this morning that if she had a good day, they'd let her go home this evening.  I told them I'd prefer to stay overnight and make sure she does ok.  As back in February when she was hospitalized with pneumonia, she started making progress and we went home then ended up 4 days later right back in the hospital.  Just trying to make sure she's ready this time.  As well as trying to adjust her nighttime breathing treatments to less frequently and make sure she does ok with it so that I'm not up all night giving breathing treatments at home by myself.  We're even going to get out of bed today and try to play with some toys that Child Life brought by. We're praying for a good day and a good night and hopefully, head home Wednesday.  Thank you for all your prayers and support. 

Coloring a picture for bubba
Eating some yummy soup


Saturday, May 7, 2011

There's no better medicine than your mom....

I know it has been awhile since posting but as you know no news is usually good news.  Since Reagan's birthday in February, we were able to spend some much needed time with Rod while he was home in late March/early April for his 2 wk R&R. We really enjoyed our time with Daddy and hated to see him go but he is due home in June for good. Thank you all for your support of and prayers for our troops!
Unfortunately, Reagan is having another bad episode and is in the hospital once more.  This time was really weird and unexpected because she really didn't have any symptoms before getting really sick.  Last Wed. night it all started with her eyes having a green discharge.  By Thurs. morning, her eyes were matted shut and I phoned the pediatrician who called in some eye drops for her for what we both assumed was pinkeye.  All day Thurs. she was more tired than normal and would fall asleep on a whim which is not her norm. Her nose has been bleeding off and on lately (which happens occassionally due to her being on a daily aspirin regimen). By Th. early evening, she began vomiting old looking blood.  I got her up in the recliner with me to try to get her nose to stop bleeding when I decided to put the pulsox on her and check her oxygen levels.  They were in the mid to upper 80s.  She immediately fell back asleep in my arms and would only wake to vomit this old blood and then fall back asleep again.  She also had a fever of 99.1, then 99.8 before leaving the house to head to the ER in Austin.  Her oxygen levels also her dropped to about 79 before leaving and was holding steady.  Upon arriving at the ER Thur. night around 9pm, Reagan's temp was 103.9 and needed 3L of oxygen.  A chest x-ray was done which didn't look any different from the one in Feb. when we were here with pneumonia. An iv. was started and blood work done.  Nothing showed up on the bloodwork other than she was a little dehydrated. It was suspected she had some kind of virus (possibly adenovirus) but because of her immune system was given a round of antibiotics just to be safe. We finally were admitted and sent to a room around 2:30am. By Friday, Reagan had a rougher time.  Her work of breathing had increased and she was requiring more oxygen support.  In fact, we had to switch from a nasal cannula to a mask.  During the day Friday, she also spiked another fever so another x-ray was done to see if anything had changed.  This time, her xray showed a possible pneumonia in her lower left lung.  This is Reagan's worst area of her lungs because part of it has died and calcified from not getting adequate blood flow before her heart was fully repaired.  The decision was made to keep her on the antibiotic in case this truly was a pneumonia.  When I left for the Ronald McDonald House last night to get my first full nights sleep in 36 hours, Reagan was on 10L of oxygen thru the mask.  By this morning, to my surprise, I walked in to see her back on the nasal cannnula on 2L. She had a better night and  no more fevers.  Her vomiting has slowed slightly but now is starting to cough up really yucky stuff.  She's getting breathing treatments every 4 hrs and vest treatments during the day to help break things up in her lungs.  She still is feeling pretty cruddy and still not eating, has only been getting i.v. fluids. Hopefully, she will begin to feel like eating or taking formula thru her g-tube so she can get some nutrition and energy to get better.  Special thanks to all my village that helps me with Nolan in times like these (Nan & Pop, MiMi & PawPaw, Aunt Kay & Mrs. Debra Moore).
Looks like I'll be spending this Mother's Day in the hospital as I was this time last year.  Reagan received her full repair of her heart on May 5, 2010 and was still on the ventilator on Mother's Day last year.  I am thankful she is not on the ventilator this time but pray she starts to feel better real soon as she looks so pathetic and sick.

Let me conclude by wishing all my mom friends a Happy Mother's Day and a special prayer to one of our heart moms, Marcia, as her sweet Anna (age 7) went to be with Jesus recently.  Marcia, I appreciate your sweet messages you always leave and will be thinking of you tomorrow.
Also, I'd like to thank my sweet Mom for giving me life 35 yrs. ago and for always being there for me growing up and now being there for me and my babies.  I love you Mom!!! 
Lastly, while checking my emails from the hospital room, I received this in an email from the Ronald McDonald House and found it quite fitting so wanted to share:

She holds your hand when you get a shot.
She hugs you when you're scared a lot.
She plays games to help you pass the time.
She knows your favorite nursery rhyme.
She always remembers to bring your favorite stuffed animal sheep.
She lays with you in your hospital bed until you fall asleep.

NOTHING CAN MAKE A CHILD FEEL BETTER QUITE LIKE A MOM.

Tuesday, February 15, 2011

HAPPY BIRTHDAY SWEET REAGAN!!!!









I cannot believe, even as I'm typing this, that my baby girl is 4 years old today.  What an adventurous 4 years it has been!  She has definitely proved to be our strong-willed, go-getter, never give up child and for that we are truly thankful as that spirit has gotten her here today.  I know no better way than to reflect on the past 4 yrs. than to show you some pics.  There were so many, I had a hard time deciding but think it shows her journey quite well.
Meeting Nolan for the first time at 10 days old


After 1st heart surgery (4 mos. old)
What have I gotten myself into?

Not always happy about the situation....

But goes with the flow, nonetheless!

Happy for family times...

And thankful for home times!

Putting up with the hospital time...

And hospital baths...


Maybe that's why she makes the most of her time when not in the hospital...


We have so many to thank who've helped along the way
It's been a wild ride, but they've been there from day to day.

Ronald McDonald House Charities
Wilsonart International Inc


Our Lord & Savior Jesus Christ
Early Childhood Intervention Therapists & Staff
Hope Therapy Therapists & Staff
Donna Ingram, PT
Temple Independent School District Homebound Teacher,  Melissa Prather
Dell Children's Medical Center PICU & IMC Attendings, Nurses, RT's & Staff
Lucile Packard Children's Hospital CVICU & 3West Attendings, Nurses, RT's & Staff
Dr. Frank Hanley, miracle worker and renowned heart surgeon
Children's Cardiology Associates & Dr. Gregory Johnson
Austin Children's Chest Associates & Dr. Jordan Scalo
Dr. Rebecca Riser, Pediatrician & Nurse Shannon
Wonderful Del Norte Neighborhood Family
Excellent School Family at Kennedy-Powell Elementary
Church Family At Temple Bible Church
Open Range Cowboy Church


Family & Friends who encompass alot of you 
(Don't think for one minute you're any less important because you fall in this category... for you are the ones who hold us up in prayer, leave us encouraging messages, take care of Nolan & bring us meals during the crazy times)

And last but not least, our extended heart family we've come to know through this all...thank you for your support, suggestions & first hand experience at all this...You all know what it's truly like to go down this road and we love & pray the best for you all!


Thank you Lord for this day.  For you have truly taught us ... 
Do not worry about tomorrow, for tomorrow has enough troubles of its own.