Wednesday, September 15, 2010

Home Again, Home Again....

Well, we're finally home from the hospital.  Reagan was discharged this morning (Wed.) and we were home a little after noonish.  She remains on oxygen and still has a yucky cough which brings up thick mucus.  We're hoping in the next week she can clear those lungs out and be able to finish off this bronchiolitis and do away with the oxygen.
Originally, Reagan's cardiologist had scheduled an MRVenogram to be done outpatient yesterday.  Since we were in the hospital they went ahead and did the procedure.  This was so that they could get a better look at her blood clot and make sure there were not more clots higher up in her veins.  She did have to be sedated for the procedure.  I was able to go into the procedure room and stay with her while they put her to sleep with a gas mask.  I then had to leave.  Mom & I waited for about 2 hrs. for a procedure they said would take about an hour.  I finally was able to go see her in the recovery room.  She was none too happy to be there but was glad to have mama.  Unfortunately, they had to intubate her for the procedure but was able to take the tube out immediately after.  Later that day, her cardiologist, Dr. Johnson came by her room and gave me the results of the scan.  It appeared that there was just the one blood clot--thank you Jesus!!  He is going to bring Reagan's case up this Friday when all of the cardiologists have a conference to decide if we should give the Lovenox shots more time to try to deal with the clot or go in through a heart cath in the very near future to place a stint in that vein to open it up.  Hopefully, I will know something before laying my head down Friday night.
Reagan will follow-up with her pediatrician this Friday, hematologist on Monday, and pulminologist in 2 weeks.   We appreciate all your prayers and support through this journey, as always!!!
Here are a few pics from the last few days:
Me speaking at Women's Conference day before Reagan went in hospital

In ER @ 7am with Reagan Sunday morning

Reagan in her room coloring after being admitted

Reagan with her vest on getting ready for a breathing treatment. 
(We told her she looked like her daddy with his vest on in the cockpit)

Getting her breathing treatment while the vest "shakes" her lungs to break up all the yucky stuff

Heading to her MRVenogram on Tues.  Poor baby, she had no idea what was coming, 
she was just so glad to be getting out of her hospital room

That's wraps up this update, I'll keep you posted on what the cardiologist decide to do about the blood clot. 

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