Home Sweet Home

Yes!!!! We made it home.  Sorry for not updating sooner.  Reagan was discharged on Wed. from the hospital and spent Wed. night at RMH with us before we all flew home on Thurs.  Since being home, I have been busy unpacking, giving meds, breathing treatments and catching vomit.  Yes, Reagan is still withdrawing as well as she has thrush so she has been retching and vomiting alot.  I hate seeing her this way as she had made so much progress before surgery and did not do that anymore.  She also ate, talked and walked which she is not doing at the moment.  I know she will start again it's just hard seeing her not happy when we all know what a happy child she normally is.  Anyway, we weren't even home 24 hrs. before we had to get up Friday morning and head to Austin for a lab draw and dr. appt.  She had her blood drawn Friday morning and Friday afternoon we saw her cardiologist, Dr. Johnson.  He said her creatinine was .6 (even better than her pre-op level) and all her electrolytes looked good!  He also said her echo they did on her at the hospital on Tues. looked GREAT!!  He told us we could stop one dose/day of her twice daily Bumex and Aldactone (two diuretics).  I am so glad as I feel these upset her tummy.  Next week, we will see her pediatrician and have them do another blood draw and hopefully be able to stop the diuretics all together at that point.  We also still have to see the pulminologist, nephrologist, and neurologist.  Fun, fun, I'm sure Reagan can't wait to see another doctor!  Anyway, Rod is off work for the next week so we are also trying to enjoy some family time.  This is hard as Reagan doesn't want to have anything to do with anyone but her mama so it's a little hard for me to do things with the fam.  I wanted to thank our neighbor, Debra, for driving our car to the airport and picking us up on Thurs.  Also, she had us over for dinner that night which was wonderful to have a home cooked meal for a change.
Here are some pics from the last few days:

Discharge day- getting loaded up to leave the hospital

In front of LPCH

Asleep on the couch at RMH

Nolan trying to get love from Reagan (poor thing, the only time he can get near her is 

when she's asleep because of her withdrawals)

Headed to the airport for the ride home

Loaded on the jet and ready to go home....and the passengers are:

Daddy & Reagan

Mama & Nolan

and of course, Aunt Kay

THANK YOU WILSONART FOR THE RIDE HOME- WE TRULY APPRECIATE IT!!

Aahhhhh.....finally home!

Our evening of dinner and swimming at the Moore's:

 

Nolan enjoying the pool.  Reagan can't swim for another 2 weeks because of her incision.

so she was just happy visiting with Gracie, whom she missed greatly while away!

THANK YOU DEBRA, BUTCH, MARIBETH & BRENT FOR DINNER.  IT WAS DELICIOUS!

And there you have it, we're home and trying to get back to a normal life....

laundry, dishes, etc. but so thankful for it!!!

Please pray for Reagan's thrush to get better real soon as well as her withdrawals.  Thank you all again for all your love, support, prayers, cards, etc. during this journey!