Enjoying Being Home....

Hey everyone,  I know it's been awhile since posting but we have been busy enjoying family time together.  Reagan is doing great.  I know you all must have prayed hard because soon after the last post Reagan quit retching and vomiting and has been trying to eat and put things in her mouth.  Such a relief to see the Reagan from before.  She is still on all 3 meds for her withdrawals and she has her moments but for the most part is a happy girl again.  She has started back up on all of her therapies (speech, physical & occupational).  She's still a little wobbly on her feet but trying to move and groove.

The day after coming home we visited her cardiologist and had her lab work done.  All her labs looked good so he cut both of her diuretics from twice a day to once a day.  The following week she had a checkup with her pediatrician.  Because her oxygen requirement had gone up from 1/4 L (that she came home on) up to 1 L... an xray was done.  The xray showed her lungs quite "fluffy", in other words retaining fluid, so we had to go back up on her diuretics to twice a day again and will stay on that until we see the cardiologist again on July 1.  The day at the pediatrician turned into a long visit because of the xray, blood work and then waiting until the pediatrician got ahold of the cardiologist to give him the results.  Thankfully, our pediatrician's 12 yr. old daughter had come to work with her mom that day so she entertained Reagan while we waited.

Reagan and Taylor coloring together

In our family time, we've enjoyed going to see Toy Story 3 with the kids

Note: The glasses made for a cute pic but Reagan would not wear them at all during the movie, only before and after the actual movie.

We were also able to enjoy a nice Father's Day at church and them lunch afterwards

Outside the restaurant...good ole Texas BBQ that we missed out on while in California

(although, Reagan went more for the pickles and onions than the BBQ itself)

In the very near future, we have our next big stresser of the year but know God will see us through!  Thank you all again for all your love, support, prayers and encouragement!  Please continue to pray for our friends the LaPointes as baby Arden is still in the hospital in CA.  

Also, baby Hunter's family is a military family (Marines) we met while there.  He had been in the hospital about 3 weeks when Reagan was admitted and just recently got to leave the hospital but still has to remain in the area and get checkups 2-3 times a week.  Please pray they both get well enough soon so that they can go back home.