Bikes & Blood Clots

Hi everyone,
I know I just updated but alot has happened since my last post.  Friday, Reagan had a check-up with her cardiologist and during a routine echo the dr. found that she has a blood clot in her right subclavian vein leading into her right atrium.  Everything about the echo looked fantastic except this.  Her heart function & new pulmonary valve all looked wonderful.  The blood clot was a total surprise!  Dr. Johnson said he was very shocked to find this.  It is obviously something that cannot go without attention so to make a long story short, Reagan will be admitted in the morning (Sunday) at Dell Children's in Austin where injections of Lovanox will be started.  Lovanox is an anti-coagulant therapy used to treat deep-vein thrombosis (blood clots).  Dr. Johnson is hoping these injections will keep the clot from getting any larger and perhaps (we strongly pray) eliminate the clot all together.  This vein it's in is a major vein and will be needed in the future for possible central lines during hospitalizations, heart caths and if the need for a pacemaker ever arises.  The Lovanox will be started Sunday and then lab draws will be done to make sure it's the accurate dose for her and then the plan is to teach me how to give the injections and once we get approval from insurance, hopefully on Monday, can be discharged late Monday or Tuesday and I will give the shots at home.  Please pray that this hospital stay is as short-lived as it claims to be and that we have no issues with the insurance approval for the home injections.  Also, for sweet Reagan as she has no idea she is going in the hospital in the morning and will not understand why we are there much less why she's getting shots as there are no outward signs of this.  I am sooo thankful the echo was done and that the clot was discovered so that we can begin to treat it.  Please pray it does not dislodge and go to her lungs or anywhere else for that matter.  If the Lovanox treatment does not work, there is a chance she would have to have a heart cath and the dr. would go in and try to balloon that vein open so that it does not totally occlude (close).  I will update as best I can from the hospital.  Thank you to MiMi & PawPaw for keeping Nolan for me this week.
On a better note, Reagan and I, along with Aunt Kay, attended the AMBUCS Trike Rally today at Harley-Davidson in Temple.  Eleven bikes were given out to special needs individuals ranging in age from 18 months to adult age.  Thank you to the generosity of people we don't even know for providing this bike for Reagan.  We pray it is a fun means for her to build her leg muscles so she can better walk and keep up with her peers.  Here are some pics from the event.....

Reagan's physical therapist, Donna, helped start the Centex Ambucs chapter recently

Donna introducing Reagan before her trike was presented to her

Placing Reagan on her trike

securing Reagan's feet on the foot pedals with Jenise, another physical therapist

Reagan riding off on her new trike to much applause

I want to thank many of our friends and family for coming out to the event in support of Reagan.  It warmed my heart to have all of you there with us and I know Rod is thankful too.

Our sweet neighborhood family, Ms. Pat and Dick & Patty Mayfield

Reagan's old occupational therapist, Mrs. Tracy, who we give all the praise for teaching Reagan to eat

Our friends the Conleys (Joey, Marisa, Preston, Parker & Emerson)

and lastly, Aunt Kay, Uncle Mark, Taylor & Tara

Thank you all for coming!!

As you can see from the pics, Reagan appears to be a picture of health but know we must tend to this blood clot so she can remain healthy.  Keep up the praying....we cherish them!!