Friday, May 21, 2010

Busy but Better Days

Yesterday, Reagan had a PICC line put in.  It is not sufficient though.  They did not get it as centrally located as they'd like and overnight it started leaking and not drawing blood anymore.  So, today's plan was to have PICC team come back and redo it essentially but the new attending for the weekend came on and came up with a different but better plan that I actually like better.  At 6:30 tonight Reagan will go to cath lab and Dr. Perry will put in a broviac line under fluoroscopy so we'll know it's in the right place.  Then at that time, she'll be able to get rid of her central I.J. line and the PICC. As Dr. Zebrack put it, we're gonna get her "all cleaned up".  Then, it's push forward to extubation!!!  She really has been doing good on her vent settings but have just been sitting around all day waiting to get this line situation worked out before we extubate. 
While we've been waiting I gave Reagan a pedicure with pink nail polish and flower nail art stickers:
(I know- the pulsox messes up the pretty picture)

Our pedicure is thanks to our friend Lisa Shirley, who came by on Wednesday and brought Reagan a bag of goodies (nail polish, Dora toothbrush, Pinkalicious book, Hello Kitty pajamas, headbands & more)

Thanks Shirley family for all the goodies and pictures Kyle & Quinn colored for Reagan

In addition to the PICC line yesterday, Reagan had an EEG and a CT scan of her brain, chest and belly to look for signs of infection.  The EEG showed no signs of seizures.  The CT scan showed no signs of meningitis in the brain, no problems with the belly and the lungs showed signs of either pneumonia or atelectasis (collapse of lung or small alveoli) in the back of her lungs.  This is not a shocker as Reagan does have H flu which can cause pneumonia as well as she has been lying flat for more than 2 wks now and that area of the lung hasn't had quite the opportunity to expand itself to the fullest capacity.  In spite of all the good reports from all the imaging & all the antibiotics she's on, she continues to spike high fevers (103).
Once again, if she can get her breathing tube out and sit up and move around, it can only help the whole situation!
Reagan has not had any more seizure activity and I am much more confident that hopefully it was sedation-related before.  Neuro has started her on seizure medication to be safe and wants us to go home on it and then follow up with a Neurologist back home for how long the course should be.
It seems like I'm forgetting to tell you something but I'm gonna sign off for now.  We're about to leave for the cath lab.
I did want to say thanks to our neighbor Pat Campbell for cooking my boys dinner & dessert.  You're the greatest, Ms. Pat!

8 comments:

  1. Praying for extubation soon:) Reagan is so lucky to have a Mommy like you, who keeps her looking BEAUTIFUL at all times:) Hope you have been able to get some rest here and there. Hope all goes well with the broviac line.
    P.S.
    We LOVE Dr. Zebrack she is an AWESOME doctor.

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  2. Yay! Sounds like things are going in the right direction! Can't wait to see Miss Reagan's smile again. Love and prayers, Melissa

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  3. I have been checking in and praying for the specific requests. Praying for extubation soon.

    Thanks for the updates.
    Jennifer Stonecipher

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  4. Let us know if we can take Nolan off Rod's hands for a couple hours this weekend. Praying for y'all. Loved the toes!

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  5. Thank goodness things are looking up! Rod was a Kinder trooper today...said he was worn out!!! HAHA! I am so glad he got to go along!
    Nolan seems to be hanging in there but I know he will be happiest when his mom and sister return!
    Until then,
    Debra

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  6. Love the pink toenails!! Thanks so much for your posts. You are in our thoughts and prayers continually. Always anxious to hear the latest; so glad today's post is more positive. May God grant you all a peaceful night followed by a day of rapid improvement.

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  7. Look at those pretty little feet!
    Praying for consistent improvement...and a successful extubation!

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  8. Jenn,

    Reagan is such a blessed little sweetie......having a mommy who is SO amazing about staying on top of all of her procedures and needs is no small thing. So glad for good reports. Prayers continue.

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